Question:
- Hide quoted text — Show quoted text -Wesley wrote: > I went to the pain clinic today. The doctors were very nice. After > listening carefully (a rare trait in medicine these days), they formed > a plan. They prescribed duragesic patches, 25 micrograms per hour, > lidocane patches, clonidine twice a day to cut down the traffic of > pain signals, and they spread the neurontin out to four 600 mg doses. > They said that 600 mg is all the body can absorb at one time. The > clonidine and lidocane patches must be approved by the transplant > people before being prescribed. I am wearing the first duragesic > patch right now, waiting unpatiently for it to kick in. > The place was set up like an emergency room, with ten rooms in a > circle surrounding a nurse’s station. Each room had a hospital bed in > place of an exam table. They do a lot of nerve blocks and epidurals. > When the nurse saw me, she said that I was an 8, referring to the 0-10 > pain scale. She said that my face looked like the one above 8 on the > scale, just to the left of the one that was crying. I guess you get > to be a fair judge of pain when you see a lot of it.
Hi Wes, Glad you’ve got a plan going now for the pain and hopefully the duragesic has already kicked in. The mammogram technician "dx’d me" <g> When I asked how did she know, she said she could tell by my posture. Glad you found expert care. Hugs J
Response:
Hi Mary, Ten percocets, how stingy is that? Your PCP must be one of those docs who worries too much about addiction. Anyway, the pain guy said that opioids and neurontin are an excellent combination for headache, neuralgia, and neuropathy. I wish you had gotten that appointment to a pain specialist. What a difference it has made for me already. I am pain free right now. There is breakthrough pain when the neurontin wears off, but it doesn’t last long. – Hide quoted text — Show quoted text -"Mair" <stin…@earthlink.net> wrote in message <news:lJ7Ga.46060$Io.4241039@newsread2.prod.itd.earthlink.net>… > Wes, > way to go with the pain meds, congratulations on getting them. I had a > catastrophically bad week… but am having trouble hooking up with the > newsgroop. How quickly did you drop the pred? You do know that the joint > pain rebounds, almost regardless as to how small the dosage drop. I would > try 1mg or 0.5 mg at a time to go completely off it. Try the decrease for a > week, and don’t expect another until your world is great again. Before you > know it, you will be off, or at least down to 3 or 4 mg. > On account of my insanity-producing migraine, I did get a tiny prescription > of Percocet (10 tabs, hey don’t take them all at once, huh?). And I have > told her (my PCP doc) that I need to go to a physical therapy or a pain > clinic… that, no, the percocet is not the answer. It is helping > tremendously though…. not for the migraine, but for the rest of my body, > which makes it way easier for me to deal with the headache pain. > Yes pain has measurable symptoms! Both my pulse and my BP were racing, as > well as that drawn look on the face and pale or greenish skin. I am glad > that you were not the "crying" picture. How sad is that. I never cry at a > 9 or 10… I become like a cigarstore indian… without his cigar, > nonetheless. Unresponsive is what I am getting at. > So me, I’m flushing my sinuses with salt water, and spacing my percocets as > far apart as I can. The percs make my hands strong enough so that I can > massage my own shoulders neck and back, and face… which helps the headache > quite a bit. > Only absorb 600 Neuro at a time, eh? hmmm. I take 800s and I can’t say > that I observe much help from them… not even drowsiness. > Well, I hope you are not a number 8 any more. > We wish you the very best > Mary and Pigmet > "Wesley" <johnjohnston2…@msn.com> wrote in message > news:112adbed.0306121351.4030bbb3@posting.google.com… > > Hello, > > I went to the pain clinic today. The doctors were very nice. After > > listening carefully (a rare trait in medicine these days), they formed > > a plan. They prescribed duragesic patches, 25 micrograms per hour, > > lidocane patches, clonidine twice a day to cut down the traffic of > > pain signals, and they spread the neurontin out to four 600 mg doses. > > They said that 600 mg is all the body can absorb at one time. The > > clonidine and lidocane patches must be approved by the transplant > > people before being prescribed. I am wearing the first duragesic > > patch right now, waiting unpatiently for it to kick in. > > The place was set up like an emergency room, with ten rooms in a > > circle surrounding a nurse’s station. Each room had a hospital bed in > > place of an exam table. They do a lot of nerve blocks and epidurals. > > When the nurse saw me, she said that I was an 8, referring to the 0-10 > > pain scale. She said that my face looked like the one above 8 on the > > scale, just to the left of the one that was crying. I guess you get > > to be a fair judge of pain when you see a lot of it.
Response:
I’m glad to hear you are doing so well Wes. I too hope the patches and drugs kick in and give you the relief you’re needing. I haven’t touched base with the group in too long. Between transferring computer systems at work, busy with kids, life in general and "managing" (yeah right) the Lupus, the last thing i want to do is get on this ol’ computer of mine. Dawn "J" <nots…@spamNo.inv> wrote in message
news:3EE9B26E.665C3B65@execulink.com… – Hide quoted text — Show quoted text -> Wesley wrote: > > I went to the pain clinic today. The doctors were very nice. After > > listening carefully (a rare trait in medicine these days), they formed > > a plan. They prescribed duragesic patches, 25 micrograms per hour, > > lidocane patches, clonidine twice a day to cut down the traffic of > > pain signals, and they spread the neurontin out to four 600 mg doses. > > They said that 600 mg is all the body can absorb at one time. The > > clonidine and lidocane patches must be approved by the transplant > > people before being prescribed. I am wearing the first duragesic > > patch right now, waiting unpatiently for it to kick in. > > The place was set up like an emergency room, with ten rooms in a > > circle surrounding a nurse’s station. Each room had a hospital bed in > > place of an exam table. They do a lot of nerve blocks and epidurals. > > When the nurse saw me, she said that I was an 8, referring to the 0-10 > > pain scale. She said that my face looked like the one above 8 on the > > scale, just to the left of the one that was crying. I guess you get > > to be a fair judge of pain when you see a lot of it. > Hi Wes, > Glad you’ve got a plan going now for the pain and hopefully the duragesic > has already kicked in. > The mammogram technician "dx’d me" <g> When I asked how did she know, she > said she could tell by my posture. > Glad you found expert care. > Hugs > J
Response:
Hi Wes, That is wonderful news. It is so nice to hear you say that you are pain free. BJ-Sk. Canada "Wesley" <johnjohnston2…@msn.com> wrote in message
news:112adbed.0306130621.601c844e@posting.google.com… > Hi Mary, > Ten percocets, how stingy is that? Your PCP must be one of those docs > who worries too much about addiction. Anyway, the pain guy said that > opioids and neurontin are an excellent combination for headache, > neuralgia, and neuropathy. I wish you had gotten that appointment to > a pain specialist. What a difference it has made for me already. I > am pain free right now. There is breakthrough pain when the neurontin > wears off, but it doesn’t last long. > "Mair" <stin…@earthlink.net> wrote in message
<news:lJ7Ga.46060$Io.4241039@newsread2.prod.itd.earthlink.net>… – Hide quoted text — Show quoted text -> > Wes, > > way to go with the pain meds, congratulations on getting them. I had a > > catastrophically bad week… but am having trouble hooking up with the > > newsgroop. How quickly did you drop the pred? You do know that the joint > > pain rebounds, almost regardless as to how small the dosage drop. I would > > try 1mg or 0.5 mg at a time to go completely off it. Try the decrease for a > > week, and don’t expect another until your world is great again. Before you > > know it, you will be off, or at least down to 3 or 4 mg. > > On account of my insanity-producing migraine, I did get a tiny prescription > > of Percocet (10 tabs, hey don’t take them all at once, huh?). And I have > > told her (my PCP doc) that I need to go to a physical therapy or a pain > > clinic… that, no, the percocet is not the answer. It is helping > > tremendously though…. not for the migraine, but for the rest of my body, > > which makes it way easier for me to deal with the headache pain. > > Yes pain has measurable symptoms! Both my pulse and my BP were racing, as > > well as that drawn look on the face and pale or greenish skin. I am glad > > that you were not the "crying" picture. How sad is that. I never cry at a > > 9 or 10… I become like a cigarstore indian… without his cigar, > > nonetheless. Unresponsive is what I am getting at. > > So me, I’m flushing my sinuses with salt water, and spacing my percocets as > > far apart as I can. The percs make my hands strong enough so that I can > > massage my own shoulders neck and back, and face… which helps the headache > > quite a bit. > > Only absorb 600 Neuro at a time, eh? hmmm. I take 800s and I can’t say > > that I observe much help from them… not even drowsiness. > > Well, I hope you are not a number 8 any more. > > We wish you the very best > > Mary and Pigmet > > "Wesley" <johnjohnston2…@msn.com> wrote in message > > news:112adbed.0306121351.4030bbb3@posting.google.com… > > > Hello, > > > I went to the pain clinic today. The doctors were very nice. After > > > listening carefully (a rare trait in medicine these days), they formed > > > a plan. They prescribed duragesic patches, 25 micrograms per hour, > > > lidocane patches, clonidine twice a day to cut down the traffic of > > > pain signals, and they spread the neurontin out to four 600 mg doses. > > > They said that 600 mg is all the body can absorb at one time. The > > > clonidine and lidocane patches must be approved by the transplant > > > people before being prescribed. I am wearing the first duragesic > > > patch right now, waiting unpatiently for it to kick in. > > > The place was set up like an emergency room, with ten rooms in a > > > circle surrounding a nurse’s station. Each room had a hospital bed in > > > place of an exam table. They do a lot of nerve blocks and epidurals. > > > When the nurse saw me, she said that I was an 8, referring to the 0-10 > > > pain scale. She said that my face looked like the one above 8 on the > > > scale, just to the left of the one that was crying. I guess you get > > > to be a fair judge of pain when you see a lot of it.
Response:
Ditto re the catheter into the spine with meds! yech! I misunderstood about your patch I think and that is a good thing! So you are getting alot more relief then than you would have with the percs with tylenol ( along with saving your liver 
)… that is really great! and sounds like a bunch of terrific docs at your pn.mngt. clinic! …. Your arriving at an *8 and leaving with *relief…. can’t beat that for sure! Good luck with the continuing pain relief and I hope it never returns to you! hugs……from Shelagh "Wesley" <johnjohnston2…@msn.com> wrote in message
news:112adbed.0306130644.541651b5@posting.google.com… – Hide quoted text — Show quoted text -> Hi Shelagh, > I really think that the doctor thought he was doing me a favor with > the patch. He said that it was the same as 12 to 16 percocets, > without all that tylenol. I take so many meds that he was worried > about my liver. The patch and the neurontin are a one-two punch for > neuropathy. He said that I could take as many 600 mg doses of > neurontin as I was willing to swallow, but he hoped that four would be > enough. Then there is the clonidine and the lidocane. My transplant > coordinator said that getting the surgeon to okay them should be no > problem. If all that does not work, the next step is a catheter in my > lower back, and a pump that will deliver medication directly into my > spine. I hope it does not get that far.
Response:
Hi Shelagh, I really think that the doctor thought he was doing me a favor with the patch. He said that it was the same as 12 to 16 percocets, without all that tylenol. I take so many meds that he was worried about my liver. The patch and the neurontin are a one-two punch for neuropathy. He said that I could take as many 600 mg doses of neurontin as I was willing to swallow, but he hoped that four would be enough. Then there is the clonidine and the lidocane. My transplant coordinator said that getting the surgeon to okay them should be no problem. If all that does not work, the next step is a catheter in my lower back, and a pump that will deliver medication directly into my spine. I hope it does not get that far. – Hide quoted text — Show quoted text -"Shelagh" <tidering…@shaw.ca> wrote in message <news:icbGa.178798$ro6.5187007@news2.calgary.shaw.ca>… > Good going Wes! > Some success is there even though small ;( > Praying that your duragesic patch kicks in very quickly and that the > other meds are approved for you and that the whole shebang works like a > hot damn for you!! > Don’t know why they just won’t give you what works though…. the > percocet I mean… why on earth are some doctors so tight fisted with > analgesia?! If it was them or their family members you can bet they > would be demanding relief!! > Good luck to you…. wishing you only pain free days! and many of them! > — > hugs……from Shelagh > "Wesley" <johnjohnston2…@msn.com> wrote in message > news:112adbed.0306121351.4030bbb3@posting.google.com… > > Hello, > > I went to the pain clinic today. The doctors were very nice. After > > listening carefully (a rare trait in medicine these days), they formed > > a plan. They prescribed duragesic patches, 25 micrograms per hour, > > lidocane patches, clonidine twice a day to cut down the traffic of > > pain signals, and they spread the neurontin out to four 600 mg doses. > > They said that 600 mg is all the body can absorb at one time. The > > clonidine and lidocane patches must be approved by the transplant > > people before being prescribed. I am wearing the first duragesic > > patch right now, waiting unpatiently for it to kick in. > > The place was set up like an emergency room, with ten rooms in a > > circle surrounding a nurse’s station. Each room had a hospital bed in > > place of an exam table. They do a lot of nerve blocks and epidurals. > > When the nurse saw me, she said that I was an 8, referring to the 0-10 > > pain scale. She said that my face looked like the one above 8 on the > > scale, just to the left of the one that was crying. I guess you get > > to be a fair judge of pain when you see a lot of it.
Response:
Hi Andy, I’ve had that doctor too! He sure gets around. When I handed him a copy of my research, on which I spent hours, he laughed out loud. I knew then that I was in big trouble. Perhaps his type should just yell out his diagnosis through his office door. No sense opening it after all! All the best to your wife, and you also. You must be a wonderful husband. – Hide quoted text — Show quoted text -Andy <a…@kitzbuhel.demon.co.uk> wrote in message <news:V+fobfGw0Z6+EwBg@kitzbuhel.demon.co.uk>… > In article <112adbed.0306121351.4030b…@posting.google.com>, Wesley > <johnjohnston2…@msn.com> wrote > >Hello, > >I went to the pain clinic today. The doctors were very nice. After > >listening carefully (a rare trait in medicine these days), > Ha! Apparently one of the UK medical journals has an article in the > latest issue saying that knowledgeable patients who do their research > before an appointment take up too much of the doctor’s time. I read this > out to my wife (*), who said it must have been written by a doctor like > one she once had. The local story on him was that if he was any quicker, > he’d be writing Good Morning on the prescription pad and handing it to > you as you entered his consulting room. > {for some value of ‘consult’ asymptotically close to zero} > (*) for new readers: she has the Lupus (and more); I’m just married to > it.
Response:
In article <112adbed.0306121351.4030b…@posting.google.com>, Wesley <johnjohnston2…@msn.com> wrote >Hello, >I went to the pain clinic today. The doctors were very nice. After >listening carefully (a rare trait in medicine these days),
Ha! Apparently one of the UK medical journals has an article in the latest issue saying that knowledgeable patients who do their research before an appointment take up too much of the doctor’s time. I read this out to my wife (*), who said it must have been written by a doctor like one she once had. The local story on him was that if he was any quicker, he’d be writing Good Morning on the prescription pad and handing it to you as you entered his consulting room. {for some value of ‘consult’ asymptotically close to zero} (*) for new readers: she has the Lupus (and more); I’m just married to it. — Andy [Chair, N E Lupus Group] See http://www.kitzbuhel.demon.co.uk/lupus for more!
Response:
Hello, I went to the pain clinic today. The doctors were very nice. After listening carefully (a rare trait in medicine these days), they formed a plan. They prescribed duragesic patches, 25 micrograms per hour, lidocane patches, clonidine twice a day to cut down the traffic of pain signals, and they spread the neurontin out to four 600 mg doses. They said that 600 mg is all the body can absorb at one time. The clonidine and lidocane patches must be approved by the transplant people before being prescribed. I am wearing the first duragesic patch right now, waiting unpatiently for it to kick in. The place was set up like an emergency room, with ten rooms in a circle surrounding a nurse’s station. Each room had a hospital bed in place of an exam table. They do a lot of nerve blocks and epidurals. When the nurse saw me, she said that I was an 8, referring to the 0-10 pain scale. She said that my face looked like the one above 8 on the scale, just to the left of the one that was crying. I guess you get to be a fair judge of pain when you see a lot of it.
Response:
Wes, way to go with the pain meds, congratulations on getting them. I had a catastrophically bad week… but am having trouble hooking up with the newsgroop. How quickly did you drop the pred? You do know that the joint pain rebounds, almost regardless as to how small the dosage drop. I would try 1mg or 0.5 mg at a time to go completely off it. Try the decrease for a week, and don’t expect another until your world is great again. Before you know it, you will be off, or at least down to 3 or 4 mg. On account of my insanity-producing migraine, I did get a tiny prescription of Percocet (10 tabs, hey don’t take them all at once, huh?). And I have told her (my PCP doc) that I need to go to a physical therapy or a pain clinic… that, no, the percocet is not the answer. It is helping tremendously though…. not for the migraine, but for the rest of my body, which makes it way easier for me to deal with the headache pain. Yes pain has measurable symptoms! Both my pulse and my BP were racing, as well as that drawn look on the face and pale or greenish skin. I am glad that you were not the "crying" picture. How sad is that. I never cry at a 9 or 10… I become like a cigarstore indian… without his cigar, nonetheless. Unresponsive is what I am getting at. So me, I’m flushing my sinuses with salt water, and spacing my percocets as far apart as I can. The percs make my hands strong enough so that I can massage my own shoulders neck and back, and face… which helps the headache quite a bit. Only absorb 600 Neuro at a time, eh? hmmm. I take 800s and I can’t say that I observe much help from them… not even drowsiness. Well, I hope you are not a number 8 any more. We wish you the very best Mary and Pigmet "Wesley" <johnjohnston2…@msn.com> wrote in message
news:112adbed.0306121351.4030bbb3@posting.google.com… – Hide quoted text — Show quoted text -> Hello, > I went to the pain clinic today. The doctors were very nice. After > listening carefully (a rare trait in medicine these days), they formed > a plan. They prescribed duragesic patches, 25 micrograms per hour, > lidocane patches, clonidine twice a day to cut down the traffic of > pain signals, and they spread the neurontin out to four 600 mg doses. > They said that 600 mg is all the body can absorb at one time. The > clonidine and lidocane patches must be approved by the transplant > people before being prescribed. I am wearing the first duragesic > patch right now, waiting unpatiently for it to kick in. > The place was set up like an emergency room, with ten rooms in a > circle surrounding a nurse’s station. Each room had a hospital bed in > place of an exam table. They do a lot of nerve blocks and epidurals. > When the nurse saw me, she said that I was an 8, referring to the 0-10 > pain scale. She said that my face looked like the one above 8 on the > scale, just to the left of the one that was crying. I guess you get > to be a fair judge of pain when you see a lot of it.
Response:
Good going Wes! Some success is there even though small ;( Praying that your duragesic patch kicks in very quickly and that the other meds are approved for you and that the whole shebang works like a hot damn for you!! Don’t know why they just won’t give you what works though…. the percocet I mean… why on earth are some doctors so tight fisted with analgesia?! If it was them or their family members you can bet they would be demanding relief!! Good luck to you…. wishing you only pain free days! and many of them! — hugs……from Shelagh "Wesley" <johnjohnston2…@msn.com> wrote in message
news:112adbed.0306121351.4030bbb3@posting.google.com… – Hide quoted text — Show quoted text -> Hello, > I went to the pain clinic today. The doctors were very nice. After > listening carefully (a rare trait in medicine these days), they formed > a plan. They prescribed duragesic patches, 25 micrograms per hour, > lidocane patches, clonidine twice a day to cut down the traffic of > pain signals, and they spread the neurontin out to four 600 mg doses. > They said that 600 mg is all the body can absorb at one time. The > clonidine and lidocane patches must be approved by the transplant > people before being prescribed. I am wearing the first duragesic > patch right now, waiting unpatiently for it to kick in. > The place was set up like an emergency room, with ten rooms in a > circle surrounding a nurse’s station. Each room had a hospital bed in > place of an exam table. They do a lot of nerve blocks and epidurals. > When the nurse saw me, she said that I was an 8, referring to the 0-10 > pain scale. She said that my face looked like the one above 8 on the > scale, just to the left of the one that was crying. I guess you get > to be a fair judge of pain when you see a lot of it.
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