Question:
hey all I just thought I would pop in and say that tomorrow is going to be a very busy day for me healthwise. First I go to find out about the pain in my breast..mammogram and ultrasound. Then I go to my rd for remecade first dose tomorrow. I am so scared and nervous and wondering if I should do this, but I am in a situation that if I do not I could wind up crippled in my hands and feet within 10 years. My ra is very active right now and my rd thinks that this would be great for me. I have heard that remecade can cause Lupus to flare or if you do not have lupus it will give you the symptoms of Lupus.. I did a search online about the drug and I have found several scary sites that are ran by attorneys that are against it. Oh man does that put a dent in my confidence. I guess I will take it with a hope and a prayer leaving it up to the big guy upstairs to lead and comfort me. I hope this darn wormy goes somewhere else before I put him on my hook and go fishing!! Love you guys see ya soon, RhondaM
Response:
Hi Rhonda! I hope all goes well for you tomorrow. Try to keep in mind that you could probably find a few scarey sites on just about every med on the planet & most would be ran by greedy lawyers. Some of this stuff we have to take *is* scarey & they do have consequences sometimes, I know, but we have to try & weigh the good & bad & I see that’s what you’ve done. Your doc knows your health issues too & surely he wouldn’t put you in harms way. Nonetheless, I can sure understand your anxiety. I’ll keep you in my thoughts tomorrow with your Mammogram & Remecade treatment. How is work going, BTW? Are you starting to get used to it all? Hugs4u, Maggie
Response:
Ditto!! Hugs, Sherry "Marg Watson" <JD…@webtv.net> wrote in message
news:10911-3F6E6E3B-96@storefull-2154.public.lawson.webtv.net… – Hide quoted text — Show quoted text -> Hi Rhonda! > I hope all goes well for you tomorrow. Try to keep in mind that you > could probably find a few scarey sites on just about every med on the > planet & most would be ran by greedy lawyers. > Some of this stuff we have to take *is* scarey & they do have > consequences sometimes, I know, but we have to try & weigh the good & > bad & I see that’s what you’ve done. > Your doc knows your health issues too & surely he wouldn’t put you in > harms way. Nonetheless, I can sure understand your anxiety. > I’ll keep you in my thoughts tomorrow with your Mammogram & Remecade > treatment. How is work going, BTW? Are you starting to get used to it > all? > Hugs4u, > Maggie
Response:
Hi Rhonda, I’ve been on Remicade, and am currently on Enbrel (which is in the same category as Remicade), not for lupus, but for ankylosing spondylitis and psoritatic arthritis. As far as I know, people with no former diagnosis of lupus getting lupuslike disease is relatively rare, and symptoms disappear after stopping treatment. There are also people who develop ANA and anti-ds-DNA-antibodies while on Remicade or Enbrel, but without getting any lupus symtoms. Some people with "real" lupus have been recieving Remicade or Enbrel for their joint symtoms without the lupus getting worse. Don’t know much about lupus, but I think your RD is monitoring you closely and wouldn’t put you on Remicade if it’d make your lupus worse. Many people with RA, AS, PA etc on alt.support.arthritis are on Remicade (and Enbrel) with great results and no problems. You might wanna peek in there. Also, talk to your doctor if you’re worried. Good luck, Nina "RhondaM" <nos…@nospam.net> skrev i meddelandet news:aisbb.1418$zh3.236@newssvr22.news.prodigy.com… – Hide quoted text — Show quoted text -> hey all I just thought I would pop in and say that tomorrow is going to be a > very busy day for me healthwise. First I go to find out about the pain in my > breast..mammogram and ultrasound. Then I go to my rd for remecade first dose > tomorrow. I am so scared and nervous and wondering if I should do this, but > I am in a situation that if I do not I could wind up crippled in my hands > and feet within 10 years. My ra is very active right now and my rd thinks > that this would be great for me. I have heard that remecade can cause Lupus > to flare or if you do not have lupus it will give you the symptoms of > Lupus.. I did a search online about the drug and I have found several scary > sites that are ran by attorneys that are against it. Oh man does that put a > dent in my confidence. I guess I will take it with a hope and a prayer > leaving it up to the big guy upstairs to lead and comfort me. > I hope this darn wormy goes somewhere else before I put him on my hook and > go fishing!! > Love you guys see ya soon, > RhondaM
Response:
me too. Hugs J – Hide quoted text — Show quoted text -Sherry wrote: > Ditto!! > "Marg Watson" wrote in message > ><snip> > > I’ll keep you in my thoughts tomorrow with your Mammogram & Remecade > treatment.
Response:
Good luck Rhonda, Did you get to go to the game on Saturday? That was great wasn’t it. I hope that all goes well with you today. Hugs Cindy "RhondaM" <nos…@nospam.net> wrote in message
news:aisbb.1418$zh3.236@newssvr22.news.prodigy.com… – Hide quoted text — Show quoted text -> hey all I just thought I would pop in and say that tomorrow is going to be a > very busy day for me healthwise. First I go to find out about the pain in my > breast..mammogram and ultrasound. Then I go to my rd for remecade first dose > tomorrow. I am so scared and nervous and wondering if I should do this, but > I am in a situation that if I do not I could wind up crippled in my hands > and feet within 10 years. My ra is very active right now and my rd thinks > that this would be great for me. I have heard that remecade can cause Lupus > to flare or if you do not have lupus it will give you the symptoms of > Lupus.. I did a search online about the drug and I have found several scary > sites that are ran by attorneys that are against it. Oh man does that put a > dent in my confidence. I guess I will take it with a hope and a prayer > leaving it up to the big guy upstairs to lead and comfort me. > I hope this darn wormy goes somewhere else before I put him on my hook and > go fishing!! > Love you guys see ya soon, > RhondaM
Response:
NO didnt get to go but I watched on tv.. I went to the OU fresno st game.. My rd says that My RA is active and I have curves in my fingers and erosions on my joints in my hands.. I guess narrowing too. I did my first dose of remacade and I am ok just tired. I Am wondering about a port instead of ivs they had a time trying to stick me.. everyone has a time trying to stick me…no veins here. I Am going to be ok fears are at rest and I am going to deal with this stuff.. hugs too all and I WILL SEE YOU SOON BYE BYE "Cindy" <cmath…@cox.net> wrote in message
news:PBCbb.2737$KJ4.869@news1.central.cox.net… – Hide quoted text — Show quoted text -> Good luck Rhonda, > Did you get to go to the game on Saturday? That was great wasn’t it. > I hope that all goes well with you today. > Hugs Cindy > "RhondaM" <nos…@nospam.net> wrote in message > news:aisbb.1418$zh3.236@newssvr22.news.prodigy.com… > > hey all I just thought I would pop in and say that tomorrow is going to be > a > > very busy day for me healthwise. First I go to find out about the pain in > my > > breast..mammogram and ultrasound. Then I go to my rd for remecade first > dose > > tomorrow. I am so scared and nervous and wondering if I should do this, > but > > I am in a situation that if I do not I could wind up crippled in my hands > > and feet within 10 years. My ra is very active right now and my rd thinks > > that this would be great for me. I have heard that remecade can cause > Lupus > > to flare or if you do not have lupus it will give you the symptoms of > > Lupus.. I did a search online about the drug and I have found several > scary > > sites that are ran by attorneys that are against it. Oh man does that put > a > > dent in my confidence. I guess I will take it with a hope and a prayer > > leaving it up to the big guy upstairs to lead and comfort me. > > I hope this darn wormy goes somewhere else before I put him on my hook and > > go fishing!! > > Love you guys see ya soon, > > RhondaM
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