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Lupus??? diagnosis??

Question:

M wrote: > I have had a rash on my cheeks for about a month. > My family doc is sending me to a Rheumatologist > I have several questions: > I have tried metrogel (Rosacea) and Tetracycline for my face.  Nothing > helped. > Any suggestions?

Well, you may want the rash to be there when you see the rheumatolgist or take photos of it. (before it disappears). List what you tried to make it go away and didn’t work. Now about metrogel – http://www.pdrhealth.com/drug_info/rxdrugprofiles/drugs/met1601.shtml topical metronidazole Side effects cannot be anticipated. If any develop or change in intensity, inform your doctor as soon as possible. Only your doctor can determine if it is safe for you to continue using topical metronidazole. Side effects may include: Burning or stinging, dryness, itching, metallic taste, nausea, redness, skin irritation, tingling or numbness of hands and feet, worsening of rosacea" Another form of metronidazole (cream) that I use for something else, is way too strong for me and/or I have a sensitivity to it. Both of yours seem to be in families of antibiotics/antinflammatory. If you look in KC’s post here – she mentions what to avoid and how to protect yourself from UV rays. <http://groups.google.com/groups?selm=cvolvv8iei519orjnkmceajnht58h0ut…> I’m wondering if a different cream with cortisone in it might help? Just a thought, because I’m not a doctor. J

Response:

Not as rare as one would think. I was dx’d with lupus, or a lupus-like syndrome 15 yrs ago by the head of rheumotology at Clevenand University Hospitay because of bloodwork & symptoms. How’s your anti-cardiolipin antibody test? Although this fluctuates greately, & not necessarily according to disease activity. My ANA is negative, sed rate is normal, I also have a very high C-reactive protein, am positive for anti-cardiolipin auto-antibody, & positive for RANA. That, given my symptoms of lupus, lead to a diagnosis. I had pancreatitis at 17 (didn’t drink), arthritis from the age of 11, nasal & mout & scalp ulcers, many bouts of pleuracy, malar rash, extreme photosensitivity (NOT a sunburn but a rash that feels like an acid burn), kidney abnormalities, Raynaud’s, livido reticularis, etc. etc. I was lucky, my GP suspected it long before I even knew what lupus was. I heard about a new text available to detect us unlucky people. Candi ———- In article <pQ0ac.7164$lt2.1…@newsread1.news.pas.earthlink.net>, Kristin – Hide quoted text — Show quoted text -<aeroch…@earthlinkremovethispart.net> wrote: >"M" <mke…@prodigy.net> wrote in news:R2L9c.45443$a%1.24825 >@newssvr16.news.prodigy.com: >> Hi, >Hi!! >And welcome :) >> I recently had some blood work that showed a very high C-reactive >Protein >> and sed rate. >> ANA was negative. >> I have had a rash on my cheeks for about a month. >> My family doc is sending me to a Rheumatologist >> I have several questions: >> Can you have lupus without a positive ANA? >I think so, but it’s rare (I agree with the other replies) >> Is this the correct type of doctor? >Yup!! >> I have tried metrogel (Rosacea) and Tetracycline for my face.  Nothing >> helped. >> Any suggestions? >If you figure this one out, tell all of us!  :) >> Any other suggestions?? >Hang in there, and take things day by day.  Don’t worry too much about >this stuff… >> thanks >You’re welcome :) >-Kristin

Response:

"M" <mke…@prodigy.net> wrote in news:R2L9c.45443$a%1.24825 @newssvr16.news.prodigy.com: > Hi,

Hi!! And welcome :) > I recently had some blood work that showed a very high C-reactive Protein > and sed rate. > ANA was negative. > I have had a rash on my cheeks for about a month. > My family doc is sending me to a Rheumatologist > I have several questions: > Can you have lupus without a positive ANA?

I think so, but it’s rare (I agree with the other replies) > Is this the correct type of doctor?

Yup!! > I have tried metrogel (Rosacea) and Tetracycline for my face.  Nothing > helped. > Any suggestions?

If you figure this one out, tell all of us!  :) > Any other suggestions??

Hang in there, and take things day by day.  Don’t worry too much about this stuff… > thanks

You’re welcome :) -Kristin

Response:

M wrote: > Hi, > I recently had some blood work that showed a very high C-reactive Protein > and sed rate. > ANA was negative. > I have had a rash on my cheeks for about a month. > My family doc is sending me to a Rheumatologist > I have several questions: > Can you have lupus without a positive ANA?

Yes, but I think it’s less common. There’s also drug-induced Lupus (see website below) > Is this the correct type of doctor? > I have tried metrogel (Rosacea) and Tetracycline for my face.  Nothing > helped. > Any suggestions? > Any other suggestions?? > thanks

Hi Maureen, Welcome to alt.support.lupus Have a look around here  http://www.northeastlupus.org.uk/katfaq Make a list of your signs and symptoms. I’ll post some websites about what can cause elevated CRP and possibly some about ESR. Cross off the ones that you know for sure don’t apply. We’ll talk later. J

Response:

In article <R2L9c.45443$a%1.24…@newssvr16.news.prodigy.com>, M <mke…@prodigy.net> wrote >Hi, >I recently had some blood work that showed a very high C-reactive Protein >and sed rate. >ANA was negative. >I have had a rash on my cheeks for about a month. >My family doc is sending me to a Rheumatologist >I have several questions: >Can you have lupus without a positive ANA?

Yes – I think about 5% of lupies have negative ANA >Is this the correct type of doctor?

Yes – Rheumatologists in general are more likely to know about lupus than other types of doctor. >I have tried metrogel (Rosacea) and Tetracycline for my face.  Nothing >helped. >Any suggestions?

Pass — Andy Taylor [Chair, N E Lupus Group] See http://www.northeastlupus.org.uk for more!

Response:

Hi, I recently had some blood work that showed a very high C-reactive Protein and sed rate. ANA was negative. I have had a rash on my cheeks for about a month. My family doc is sending me to a Rheumatologist I have several questions: Can you have lupus without a positive ANA? Is this the correct type of doctor? I have tried metrogel (Rosacea) and Tetracycline for my face.  Nothing helped. Any suggestions? Any other suggestions?? thanks

Response:

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