Question:
It’s about time – they should have allocated one *billion*, though. "Janers" <rojak…@bright.net> wrote in message
news:hJN8a.222$I_1.51985@cletus.bright.net… – Hide quoted text — Show quoted text -> Sorry this is same thing for those who can not open attachments.. > janers > CONGRESS FUNDS NATIONAL LUPUS PATIENT REGISTRY, > CALLS FOR CREATION OF FEDERAL WORKING GROUP ON LUPUS, > AND PROVIDES MORE FUNDS FOR NIAMS > LFA Chapters, members, and volunteers can take great pride in recent > legislative developments that will have a significant impact on lupus > research, awareness, and medical services. Thanks to your efforts, > Congress has taken action that will benefit the 1.5 million Americans with > lupus. By participating in Advocacy Day and other LFA awareness programs, > you helped promote lupus as the prototypical autoimmune disease, and a > significant health issue for women, especially young women on color. > The LFA is pleased to announce that, through your efforts and those of > others members of the lupus community, Congress provided funds to establish > a National Lupus Patient Registry, recommended the that the Department of > Health and Human Services create a Federal Working Group on Lupus, and > allocated additional federal dollars to support the work of the National > Institute for Arthritis, Musculoskeletal, and Skin Diseases (NIAMS). > Congress provided $1 million to establish a population-based National Lupus > Patient Registry. The registry will collect data for follow-up studies > regarding the prevalence and incidence of lupus, as well as the social and > economic impact of the disease. The National Center for Chronic Disease > Prevention and Health Promotion, part of the U.S. Centers for Disease > Control and Prevention, will implement the registry. The Lupus Foundation > of America (LFA) will work closely with the Center to promote the registry, > and educate the public and the lupus community about its operation. > In addition, Congress included language in the report for the 2003 > appropriations bill that encouraged the Secretary of Health and Human > Services to establish a Federal Working Group on Lupus. The Federal Working > Group on Lupus will be comprised of representatives from all relevant > agencies of the Department of Health and Human Services and other Federal > Departments having an interest in lupus. The Working Group will coordinate > research within branches of the National Institute of Health, as well as > other federal agencies conducting studies on lupus. Through coordination > and the exchange of information, these organizations can take advantage of > new scientific opportunities in the search for safer and more effective > treatments for lupus, and ultimately find a cure. > The Working Group also will exchange information and collaborate on > programs of education awareness, social, and medical services that are > vital to supporting individuals and families affected by lupus. Federal > agencies and departments providing services to people with lupus include: > the National Institute of Health, Department of Health and Human Services, > Office on Women’s Health, Centers for Disease Control and Prevention, Food > and Drug Administration, Social Security Administration, Department of > Defense, and the Department of Veterans Affairs. > Congress also increased funding that will aid in the study of lupus. NIAMS, > the leading federal institute supporting research into the causes, > treatment, and prevention of lupus, received a substantial increase of $41 > million dollars, bringing its total budget to $489 million. This increase > will enable NIAMS to increase its support of research, professional > training, and clinical studies on lupus. > These are exciting developments in which all of you played an important > role. However, our job is not finished. We will have new objectives for > Advocacy Day this year, which will be held May 7, 2003. Your participation > is very important and helpful to achieving LFA legislative goals. You help > put a face on lupus and serve as the voice for others affected by lupus. > ****************************************************************** > Duane Peters – pet…@lupus.org > Vice President for Advocacy & Communications > Lupus Foundation of America National Office > 1300 Piccard Drive, Suite 200, Rockville, MD 20850-4303 > 301-670-9292, ext. 17 – fax 301-670-9486 > website www.lupus.org > ******************************************************************
Response:
Sorry this is same thing for those who can not open attachments.. janers CONGRESS FUNDS NATIONAL LUPUS PATIENT REGISTRY, CALLS FOR CREATION OF FEDERAL WORKING GROUP ON LUPUS, AND PROVIDES MORE FUNDS FOR NIAMS LFA Chapters, members, and volunteers can take great pride in recent legislative developments that will have a significant impact on lupus research, awareness, and medical services. Thanks to your efforts, Congress has taken action that will benefit the 1.5 million Americans with lupus. By participating in Advocacy Day and other LFA awareness programs, you helped promote lupus as the prototypical autoimmune disease, and a significant health issue for women, especially young women on color. The LFA is pleased to announce that, through your efforts and those of others members of the lupus community, Congress provided funds to establish a National Lupus Patient Registry, recommended the that the Department of Health and Human Services create a Federal Working Group on Lupus, and allocated additional federal dollars to support the work of the National Institute for Arthritis, Musculoskeletal, and Skin Diseases (NIAMS). Congress provided $1 million to establish a population-based National Lupus Patient Registry. The registry will collect data for follow-up studies regarding the prevalence and incidence of lupus, as well as the social and economic impact of the disease. The National Center for Chronic Disease Prevention and Health Promotion, part of the U.S. Centers for Disease Control and Prevention, will implement the registry. The Lupus Foundation of America (LFA) will work closely with the Center to promote the registry, and educate the public and the lupus community about its operation. In addition, Congress included language in the report for the 2003 appropriations bill that encouraged the Secretary of Health and Human Services to establish a Federal Working Group on Lupus. The Federal Working Group on Lupus will be comprised of representatives from all relevant agencies of the Department of Health and Human Services and other Federal Departments having an interest in lupus. The Working Group will coordinate research within branches of the National Institute of Health, as well as other federal agencies conducting studies on lupus. Through coordination and the exchange of information, these organizations can take advantage of new scientific opportunities in the search for safer and more effective treatments for lupus, and ultimately find a cure. The Working Group also will exchange information and collaborate on programs of education awareness, social, and medical services that are vital to supporting individuals and families affected by lupus. Federal agencies and departments providing services to people with lupus include: the National Institute of Health, Department of Health and Human Services, Office on Women’s Health, Centers for Disease Control and Prevention, Food and Drug Administration, Social Security Administration, Department of Defense, and the Department of Veterans Affairs. Congress also increased funding that will aid in the study of lupus. NIAMS, the leading federal institute supporting research into the causes, treatment, and prevention of lupus, received a substantial increase of $41 million dollars, bringing its total budget to $489 million. This increase will enable NIAMS to increase its support of research, professional training, and clinical studies on lupus. These are exciting developments in which all of you played an important role. However, our job is not finished. We will have new objectives for Advocacy Day this year, which will be held May 7, 2003. Your participation is very important and helpful to achieving LFA legislative goals. You help put a face on lupus and serve as the voice for others affected by lupus. ****************************************************************** Duane Peters – pet…@lupus.org Vice President for Advocacy & Communications Lupus Foundation of America National Office 1300 Piccard Drive, Suite 200, Rockville, MD 20850-4303 301-670-9292, ext. 17 – fax 301-670-9486 website www.lupus.org ******************************************************************
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