Question:
Hello all..:o) I had a great weekend. I took a chance and went all out this weekend. First of all I went to a college football game, it rained and stormed, but you know what this crazy girl and her crazy hubby just stood out it the stuff and had a ball. Then today got up and went to the state fair. I bought tickets for my 6 year old to go see Toy Story 2 on ice at the fair. Just the delight in his eyes this afternoon was the best medicine of all. I now hurt all over and I am very very tired. I am functioning on pain killers and pop (for my tummy) but I don’t regret one moment at all. I might pay for it all week, but I had fun!!! While I was at the fair, my hubby found a Lupus foundation booth and when me and the kiddo was finished with the show he took me over there. I was hesitant about approaching the booth at first, but then I said oh what the heck these people know what it is like to have this and they might have something worth finding out about. Well, they did. They asked me if I knew anyone that had Lupus. I said yeah …me. It took everything I had to keep from welling up with tears. I was thinking there are actually other people out there that is going through the same darn thing I am. I guess realizing that I am not the only one is slowly hitting me. Finding out in March that I had Lupus was the beginning of steps in dealing with my illness. Now I find myself going back and forth on the staircase of coping. Anyways, they asked me if I had a book on Lupus and I have yet to buy one. So, they were generous to give me one . Mind you it is a pretty informed one. I guess my question involves methotrexate and wanting to know if anyone knows about where I can find medical info about it. The book had limited information about liver damage that methotrexate can do to a person. I want to find out more about it. I really want to thank everyone here. You guys are my support group. I know I am going to get through this, and it has alot to do with the people here! Now it is time for me to drape myself on the couch for the week..lol…I had my fun and now I have to pay the piper. I hope everyone else had a great weekend and enjoyed beautiful weather. See ya’ll soon, RhondaM
Response:
Hi Rhonda. WebMD is a good source for basic info. I’ve been seeing a naturopath as well as a rheumy and my regular doc, and he says he’d rather have me on methotrexate than prednisone or plaquenil or anything else. Says that, all told, methotrexate isn’t too bad. Of course since it’s not too bad for you, I had a rare severe allergic reaction after several weeks and now have to take the nasty P&P, but still… (I would take my dose Sunday night and wake up Monday morning with hives.) It did give me a metallic taste in my mouth and killed my appetite, which was great — I lost back some of this wretched prednisone weight and have managed to keep it off. It didn’t make my hair fall out. Did give me a bit of a sick feeling all the time. You might also check with your local chapter of the Arthritis Foundation. I did a lupus workshop through them a few years ago, and the big resource binder they give out had some pretty good info on the various medicines commonly used for lupus. Even in a city the size of Denver, I haven’t met another loopy, so this group is a real blessing. Hang in there… Rebecca
Response:
The fair seems to be a ok, ,I am so used to the "old" fairs of a few years ago. I think they have changed it way too much. We did have fun though. The OU game was fabulous! Hubby and I hid out under the stadium until the storm passed. That was the highlight of the weekend. I made sure to take extra pain meds when I went so I could enjoy myself without pain. At least this year we didn’t have to walk it from the stadium back to the Lloyd Noble center were we parked. I heard something about a Lupus event this weekend at the capitol. They looped the capitol for Lupus on saturday morning. I would have loved to be there. Anyways keep in touch send me an e-mail I will send you back my phone # if you want. "Cindy Mathes" <cmath…@cox.net> wrote in message
news:utsh9.42211$3k4.28760@news1.central.cox.net… – Hide quoted text — Show quoted text -> Hey Rhonda, > How is the fair this year? You know I was a little dissappointed with it > last year. > We will go next week. I guess with your belly not feeling well, you probably > didn’t get a corn dog. Or a Indian Taco.As far as the rain went, we were > working the parking lot at the Civic Center. Sopping wet and wondering if > we were gonna get hit by lightening. > I am glad you had a wonderful time, but I hope that you will recover from > overdoing it. Also, how was the Toy Story thing? My grand babies went to see > that today. > Well Just had to ask about the fair, as last year just wasn’t the same. > Cindy > "RhondaM" <woo…@intcon.net> wrote in message > news:1032153278.932337@localhost.localdomain… > > Hello all..:o) > > I had a great weekend. I took a chance and went all out this weekend. > First > > of all I went to a college football game, it rained and stormed, but you > > know what this crazy girl and her crazy hubby just stood out it the stuff > > and had a ball. Then today got up and went to the state fair. I bought > > tickets for my 6 year old to go see Toy Story 2 on ice at the fair. Just > the > > delight in his eyes this afternoon was the best medicine of all. I now > hurt > > all over and I am very very tired. > > I am functioning on pain killers and pop (for my tummy) but I don’t regret > > one moment at all. I might pay for it all week, but I had fun!!! > > While I was at the fair, my hubby found a Lupus foundation booth and when > > me and the kiddo was finished with the show he took me over there. I was > > hesitant about approaching the booth at first, but then I said oh what the > > heck these people know what it is like to have this and they might have > > something worth finding out about. Well, they did. They asked me if I > knew > > anyone that had Lupus. I said yeah …me. It took everything I had to keep > > from welling up with tears. I was thinking there are actually other people > > out there that is going through the same darn thing I am. I guess > realizing > > that I am not the only one is slowly hitting me. Finding out in March that > I > > had Lupus was the beginning of steps in dealing with my illness. Now I > find > > myself going back and forth on the staircase of coping. Anyways, they > asked > > me if I had a book on Lupus and I have yet to buy one. So, they were > > generous to give me one . Mind you it is a pretty informed one. I guess my > > question involves > > methotrexate and wanting to know if anyone knows about where I can find > > medical info about it. The book had limited information about liver damage > > that methotrexate can do to a person. I want to find out more about it. > > I really want to thank everyone here. You guys are my support group. I > know > > I am going to get through this, and it has alot to do with the people > here! > > Now it is time for me to drape myself on the couch for the week..lol…I > had > > my fun and now I have to pay the piper. > > I hope everyone else had a great weekend and enjoyed beautiful weather. > > See ya’ll soon, > > RhondaM
Response:
Hey Rhonda, How is the fair this year? You know I was a little dissappointed with it last year. We will go next week. I guess with your belly not feeling well, you probably didn’t get a corn dog. Or a Indian Taco.As far as the rain went, we were working the parking lot at the Civic Center. Sopping wet and wondering if we were gonna get hit by lightening. I am glad you had a wonderful time, but I hope that you will recover from overdoing it. Also, how was the Toy Story thing? My grand babies went to see that today. Well Just had to ask about the fair, as last year just wasn’t the same. Cindy "RhondaM" <woo…@intcon.net> wrote in message
news:1032153278.932337@localhost.localdomain… – Hide quoted text — Show quoted text -> Hello all..:o) > I had a great weekend. I took a chance and went all out this weekend. First > of all I went to a college football game, it rained and stormed, but you > know what this crazy girl and her crazy hubby just stood out it the stuff > and had a ball. Then today got up and went to the state fair. I bought > tickets for my 6 year old to go see Toy Story 2 on ice at the fair. Just the > delight in his eyes this afternoon was the best medicine of all. I now hurt > all over and I am very very tired. > I am functioning on pain killers and pop (for my tummy) but I don’t regret > one moment at all. I might pay for it all week, but I had fun!!! > While I was at the fair, my hubby found a Lupus foundation booth and when > me and the kiddo was finished with the show he took me over there. I was > hesitant about approaching the booth at first, but then I said oh what the > heck these people know what it is like to have this and they might have > something worth finding out about. Well, they did. They asked me if I knew > anyone that had Lupus. I said yeah …me. It took everything I had to keep > from welling up with tears. I was thinking there are actually other people > out there that is going through the same darn thing I am. I guess realizing > that I am not the only one is slowly hitting me. Finding out in March that I > had Lupus was the beginning of steps in dealing with my illness. Now I find > myself going back and forth on the staircase of coping. Anyways, they asked > me if I had a book on Lupus and I have yet to buy one. So, they were > generous to give me one . Mind you it is a pretty informed one. I guess my > question involves > methotrexate and wanting to know if anyone knows about where I can find > medical info about it. The book had limited information about liver damage > that methotrexate can do to a person. I want to find out more about it. > I really want to thank everyone here. You guys are my support group. I know > I am going to get through this, and it has alot to do with the people here! > Now it is time for me to drape myself on the couch for the week..lol…I had > my fun and now I have to pay the piper. > I hope everyone else had a great weekend and enjoyed beautiful weather. > See ya’ll soon, > RhondaM
Response:
Cindy Mathes wrote: > Hey Rhonda, > How is the fair this year? You know I was a little dissappointed with it > last year. > We will go next week. I guess with your belly not feeling well, you probably > didn’t get a corn dog. Or a Indian Taco.As far as the rain went, we were > working the parking lot at the Civic Center. Sopping wet and wondering if > we were gonna get hit by lightening. > I am glad you had a wonderful time, but I hope that you will recover from > overdoing it. Also, how was the Toy Story thing? My grand babies went to see > that today. > Well Just had to ask about the fair, as last year just wasn’t the same. > Cindy
With my tummy, I don’t even *want* to know what an "indian taco" is! lol -Sharon — Clear your mind, relax and float downstream. To email me, remove NOSPAM
Response:
Yep they are from our local chapter. I eat too. Just yesterday I was living on the meds and pop. I am eatibng right today.. in fact chicken breast and a baked potato for lunch. I even choked down a glass of milk( I am not a fan of milk). I think I am going to go to the library today to search for a med book about meds. Thanks for the help "J" <jwoot…@execulink.com> wrote in message
news:3D85E7BB.9B3F1386@execulink.com… – Hide quoted text — Show quoted text -> Hi Rhonda, > It can’t be too healthy just on pop and pain killers. Hope you can figure out > how to eat healthy. > Very important for your liver (since you asked) and general health. > I don’t think there is a book on meds (specifically methotrexate ) and the > liver. > Two urls > http://www.orthop.washington.edu/arthritis/medications/methotrexate/03 > http://www.merck.com/pubs/mmanual/section4/chapter43/43d.htm > They’re supposed to take bloodwork and monitor your liver enzymes, aren’t they? > There are so many other factors involved in liver damage: other meds, estrogens, > alcohol history (past, present, future), hereditary. So there’s no way to > predict and if that’s the best med to give you symptomatic relief and quality of > life… > What was the Lupus book that these kind folks gave you? Were they from the > local Lupus Foundation chapter? > If so, might be good to get involved in a local support group too. > Hugs > J > RhondaM wrote: > > Hello all..:o) > > I had a great weekend. I took a chance and went all out this weekend. First > > of all I went to a college football game, it rained and stormed, but you > > know what this crazy girl and her crazy hubby just stood out it the stuff > > and had a ball. Then today got up and went to the state fair. I bought > > tickets for my 6 year old to go see Toy Story 2 on ice at the fair. Just the > > delight in his eyes this afternoon was the best medicine of all. I now hurt > > all over and I am very very tired. > > I am functioning on pain killers and pop (for my tummy) but I don’t regret > > one moment at all. I might pay for it all week, but I had fun!!! > > While I was at the fair, my hubby found a Lupus foundation booth and when > > me and the kiddo was finished with the show he took me over there. I was > > hesitant about approaching the booth at first, but then I said oh what the > > heck these people know what it is like to have this and they might have > > something worth finding out about. Well, they did. They asked me if I knew > > anyone that had Lupus. I said yeah …me. It took everything I had to keep > > from welling up with tears. I was thinking there are actually other people > > out there that is going through the same darn thing I am. I guess realizing > > that I am not the only one is slowly hitting me. Finding out in March that I > > had Lupus was the beginning of steps in dealing with my illness. Now I find > > myself going back and forth on the staircase of coping. Anyways, they asked > > me if I had a book on Lupus and I have yet to buy one. So, they were > > generous to give me one . Mind you it is a pretty informed one. I guess my > > question involves > > methotrexate and wanting to know if anyone knows about where I can find > > medical info about it. The book had limited information about liver damage > > that methotrexate can do to a person. I want to find out more about it. > > I really want to thank everyone here. You guys are my support group. I know > > I am going to get through this, and it has alot to do with the people here! > > Now it is time for me to drape myself on the couch for the week..lol…I had > > my fun and now I have to pay the piper. > > I hope everyone else had a great weekend and enjoyed beautiful weather. > > See ya’ll soon, > > RhondaM
Response:
Hi Rhonda, It can’t be too healthy just on pop and pain killers. Hope you can figure out how to eat healthy. Very important for your liver (since you asked) and general health. I don’t think there is a book on meds (specifically methotrexate ) and the liver. Two urls http://www.orthop.washington.edu/arthritis/medications/methotrexate/03 http://www.merck.com/pubs/mmanual/section4/chapter43/43d.htm They’re supposed to take bloodwork and monitor your liver enzymes, aren’t they? There are so many other factors involved in liver damage: other meds, estrogens, alcohol history (past, present, future), hereditary. So there’s no way to predict and if that’s the best med to give you symptomatic relief and quality of life… What was the Lupus book that these kind folks gave you? Were they from the local Lupus Foundation chapter? If so, might be good to get involved in a local support group too. Hugs J – Hide quoted text — Show quoted text -RhondaM wrote: > Hello all..:o) > I had a great weekend. I took a chance and went all out this weekend. First > of all I went to a college football game, it rained and stormed, but you > know what this crazy girl and her crazy hubby just stood out it the stuff > and had a ball. Then today got up and went to the state fair. I bought > tickets for my 6 year old to go see Toy Story 2 on ice at the fair. Just the > delight in his eyes this afternoon was the best medicine of all. I now hurt > all over and I am very very tired. > I am functioning on pain killers and pop (for my tummy) but I don’t regret > one moment at all. I might pay for it all week, but I had fun!!! > While I was at the fair, my hubby found a Lupus foundation booth and when > me and the kiddo was finished with the show he took me over there. I was > hesitant about approaching the booth at first, but then I said oh what the > heck these people know what it is like to have this and they might have > something worth finding out about. Well, they did. They asked me if I knew > anyone that had Lupus. I said yeah …me. It took everything I had to keep > from welling up with tears. I was thinking there are actually other people > out there that is going through the same darn thing I am. I guess realizing > that I am not the only one is slowly hitting me. Finding out in March that I > had Lupus was the beginning of steps in dealing with my illness. Now I find > myself going back and forth on the staircase of coping. Anyways, they asked > me if I had a book on Lupus and I have yet to buy one. So, they were > generous to give me one . Mind you it is a pretty informed one. I guess my > question involves > methotrexate and wanting to know if anyone knows about where I can find > medical info about it. The book had limited information about liver damage > that methotrexate can do to a person. I want to find out more about it. > I really want to thank everyone here. You guys are my support group. I know > I am going to get through this, and it has alot to do with the people here! > Now it is time for me to drape myself on the couch for the week..lol…I had > my fun and now I have to pay the piper. > I hope everyone else had a great weekend and enjoyed beautiful weather. > See ya’ll soon, > RhondaM
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