Question:
My RD doesn’t know. She’s ruled out RA, AS, & Lupus. My labs were normal except for a slightly elevated ESR (49). There is NO joint damage at all and barely any inflammation to be felt in my joints. She’s doing a bone scan next to see where the inflammation is and go from there. She wants to see my previous RD’s thoughts because there is no way by any possible stretch of the imagination for me to have RA. She’s also testing my ESR & CRP again, as well as adding the HLA-B27 gene test. I am getting a referral to a neurologist for my migraines. Maybe that will shed light on something. -AshleyC.
Response:
A sedrate of 49 is definitely elevated – maybe not as high as some around here, but defintiel elevated. Usually the upper limit of "normal" is 20. Of course, mine’s been in the teens with obviously swollen joints for a couple of years now, so the numbers alone don’t mean much. It’s good that she’s doing further testing to try and decide what’s going on. — Nann remove the Gator cheer to email me Simply the thing I am shall make me live — William Shakespeare
Response:
The highest my sed rate ever was is 25. 49 is definitely high for me. -AshleyC. "Nann Bell" <hanbellGOGAT…@earthlink.net> wrote in message
news:0001HW.BBDECECA0030CA6F1286BE20@news.east.earthlink.net… – Hide quoted text — Show quoted text -> A sedrate of 49 is definitely elevated – maybe not as high as some around > here, but defintiel elevated. Usually the upper limit of "normal" is 20. Of > course, mine’s been in the teens with obviously swollen joints for a couple > of years now, so the numbers alone don’t mean much. It’s good that she’s > doing further testing to try and decide what’s going on. > — > Nann > remove the Gator cheer to email me > Simply the thing I am shall make me live — William Shakespeare
Response:
On Mon, 17 Nov 2003 15:54:18 -0800, "Ashley Canterbury" <gimpygr…@hotmail.com> wrote: >My RD doesn’t know. She’s ruled out RA, AS, & Lupus. My labs were normal >except for a slightly elevated ESR (49).
Not sure I’d call that "slightly" elevated. I mean, it’s not huge, but it’s not negligible either. >There is NO joint damage at all and >barely any inflammation to be felt in my joints.
Lupus arthritis rarely causes damage to joints and often shows no noticeable inflammation – sometimes mild swelling or redness. Often just pain though. Still, I’d rather you *not* have Lupus. >next to see where the inflammation is and go from there. She wants to see my >previous RD’s thoughts because there is no way by any possible stretch of >the imagination for me to have RA. She’s also testing my ESR & CRP again, as >well as adding the HLA-B27 gene test.
sorry – i’m a bit out of touch – was an ANA titre done? any of the other antibody tests such as anti-Sm, anti-Ro, anti-La? Sjogren’s can cause joint pain like lupus with no obvious inflammation or the like and can have low or normal ANA titres. Of course, there would *probably* (but not necessarily if it’s early in the game) be other Sjogren’s symptoms such as dry mouth, dry eyes, bouts of iritis… >I am getting a referral to a neurologist for my migraines. Maybe that will >shed light on something.
Best wishes. I’ve dealt with those for… well, since I was 19. I’m not 19 anymore. 
(oh, okay – 20 years) kcat – who is bored bored bored…
Response:
{{{{{{{Ashley}}}}}}} DeeTee ________________________________ DeeTee and Bob Taggart http://home.earthlink.net/~bdtaggart ________________________________ "Ashley Canterbury" <gimpygr…@hotmail.com> wrote in message
news:bpbn38$1l1ah9$1@ID-192837.news.uni-berlin.de… – Hide quoted text — Show quoted text -> My RD doesn’t know. She’s ruled out RA, AS, & Lupus. My labs were normal > except for a slightly elevated ESR (49). There is NO joint damage at all and > barely any inflammation to be felt in my joints. She’s doing a bone scan > next to see where the inflammation is and go from there. She wants to see my > previous RD’s thoughts because there is no way by any possible stretch of > the imagination for me to have RA. She’s also testing my ESR & CRP again, as > well as adding the HLA-B27 gene test. > I am getting a referral to a neurologist for my migraines. Maybe that will > shed light on something. > -AshleyC.
Response:
ALL of the lupus tests were negative. -AshleyC. "kcat" <kca…@sbcglobal.net> wrote in message
news:rjpirv4bbfigagl2neivh9oue4sqqp0v85@4ax.com… – Hide quoted text — Show quoted text -> On Mon, 17 Nov 2003 15:54:18 -0800, "Ashley Canterbury" > <gimpygr…@hotmail.com> wrote: > >My RD doesn’t know. She’s ruled out RA, AS, & Lupus. My labs were normal > >except for a slightly elevated ESR (49). > Not sure I’d call that "slightly" elevated. I mean, it’s not huge, > but it’s not negligible either. > >There is NO joint damage at all and > >barely any inflammation to be felt in my joints. > Lupus arthritis rarely causes damage to joints and often shows no > noticeable inflammation – sometimes mild swelling or redness. Often > just pain though. Still, I’d rather you *not* have Lupus. > >next to see where the inflammation is and go from there. She wants to see my > >previous RD’s thoughts because there is no way by any possible stretch of > >the imagination for me to have RA. She’s also testing my ESR & CRP again, as > >well as adding the HLA-B27 gene test. > sorry – i’m a bit out of touch – was an ANA titre done? any of the > other antibody tests such as anti-Sm, anti-Ro, anti-La? Sjogren’s can > cause joint pain like lupus with no obvious inflammation or the like > and can have low or normal ANA titres. Of course, there would > *probably* (but not necessarily if it’s early in the game) be other > Sjogren’s symptoms such as dry mouth, dry eyes, bouts of iritis… > >I am getting a referral to a neurologist for my migraines. Maybe that will > >shed light on something. > Best wishes. I’ve dealt with those for… well, since I was 19. I’m > not 19 anymore. (oh, okay – 20 years) > kcat – who is bored bored bored…
Response:
Well, crud! I hate feeling lousy and not knowing why. At least if it has a name you can educate yourself about it. Hang in there, little one, we’ll keep hoping for a swift resolution to this mess. Kelly C.;o)
Response:
Sorry you didn’t get any wiser yesterday Ashley, but it’s good that your RD keeps on investigating. Bone scan is probably a good idea. Don’t know how it is with RA and SLE, but AS changes sometimes take several years to develop. Also, early AS doesn’t always show up on plain X-rays. As for the elevated sed rate – didn’t you have some infection recently? That might account for the elevation. Nina "Ashley Canterbury" <gimpygr…@hotmail.com> skrev i meddelandet news:bpbn38$1l1ah9$1@ID-192837.news.uni-berlin.de… – Hide quoted text — Show quoted text -> My RD doesn’t know. She’s ruled out RA, AS, & Lupus. My labs were normal > except for a slightly elevated ESR (49). There is NO joint damage at all and > barely any inflammation to be felt in my joints. She’s doing a bone scan > next to see where the inflammation is and go from there. She wants to see my > previous RD’s thoughts because there is no way by any possible stretch of > the imagination for me to have RA. She’s also testing my ESR & CRP again, as > well as adding the HLA-B27 gene test. > I am getting a referral to a neurologist for my migraines. Maybe that will > shed light on something. > -AshleyC.
Response:
Hi Ashley, This soudns good, though, that this RD seems to be doing a really thorough job. Not having a diagnosis is definitely frustrating, I know, but now it sounds like you’re getting closer to one. I was complaining to Elena’s Humira study nurse this morning that Humira isn’t the complete magic wand that I’d been hoping it would be. He said he’d been noticing that with other patients as well, but that there are other very promising drugs coming along that he thinks are closer to the magic wand category. That’s all the info I have, but we’re going to talk more at her next appt. in December. I will pass any and all info, including rumors, along to ASA. Hang in there, honey, a diagnosis and a treatment are just around the corner. Evelyn (mother of Elena, who has JRA and Pancha, who has FMS) – Hide quoted text — Show quoted text -"Ashley Canterbury" <gimpygr…@hotmail.com> wrote in message <news:bpbn38$1l1ah9$1@ID-192837.news.uni-berlin.de>… > My RD doesn’t know. She’s ruled out RA, AS, & Lupus. My labs were normal > except for a slightly elevated ESR (49). There is NO joint damage at all and > barely any inflammation to be felt in my joints. She’s doing a bone scan > next to see where the inflammation is and go from there. She wants to see my > previous RD’s thoughts because there is no way by any possible stretch of > the imagination for me to have RA. She’s also testing my ESR & CRP again, as > well as adding the HLA-B27 gene test. > I am getting a referral to a neurologist for my migraines. Maybe that will > shed light on something. > -AshleyC.
If you like this post and would like to receive updates from this blog, please subscribe our feed.