Question:
You are right Lukas, not only is this confusing for us, because we all want to understand what is happening and why. But when the doctors can decide, then one starts to feel lost and let down. Hang in there and at least get as much relief from your symptoms as you can, but I would also suggest that you keep trying to get a referral to a rheumatologist, get some of your questions answered. I think we have to be persistent for the sake of our own health, physically and emotionally. Margaret
Response:
I went to Jackson Memorial Hospital Dermatology Clinic last wednesday, Like always a doctor I’ve seen before took my appointement, They come in gorup and discuss whetter they should or not reffer me to a rheumie.I guess not yet… They did’nt take my my brain fog episode too serious; my fotosensitivity also. They told me that my blood tests do not show anything to corroborate it, though my ANA tests arent normal. I got a couple of shots on the scalp ’cause I’m really going bald…..And , yes, I have discoid lupus, atralgia (?), and the scarr on my left breast is morphea, but is not scleroderma…….???????? Finally ,they all agree, at least, that I do need my plaquenil,Temovate gel for the scalp, and Lyc-Hydrin for the rashh all over my body.This is awful… Im just going to stick with my meds and forget about this people,docs are so confused….. Lukas we…@worldnet.att.net Thanks everybody for all e-mails and replies, it meant a lot to me. Peace.
Response:
I know it is a lot of reading, but I urge you to read the info about vchronic illness at: http://www.serve.com/licorice Red how the cause of most of your health problems is increased cytokines and nitric oxide and how improving your red cell health is the best thing you can do. I bet you been told many times that your were anemic or at least borderline anemic, but none of your lupus doctors did much about it. Please, for you on good, read my rough noters and try to understand them. You will be helped by this uinderstanding. DW – Hide quoted text — Show quoted text -MCLAUGHLIN wrote: > I went to Jackson Memorial Hospital Dermatology Clinic last wednesday, Like > always a doctor I’ve seen before took my appointement, They come in gorup > and discuss whetter they should or not reffer me to a rheumie.I guess not > yet… They did’nt take my my brain fog episode too serious; my > fotosensitivity also. They told me that my blood tests do not show anything > to corroborate it, though my ANA tests arent normal. I got a couple of > shots on the scalp ’cause I’m really going bald…..And , yes, I have > discoid lupus, atralgia (?), and the scarr on my left breast is morphea, but > is not scleroderma…….???????? Finally ,they all agree, at least, that I > do need my plaquenil,Temovate gel for the scalp, and Lyc-Hydrin for the > rashh all over my body.This is awful… Im just going to stick with my meds > and forget about this people,docs are so confused….. > Lukas we…@worldnet.att.net > Thanks everybody for all e-mails and replies, it meant a lot to me. Peace.
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