Lupus FAQ

Question:

That sounds like a reasonable explanation Timothy. The high platelet count is a good thing, to be sure. I just like to try to figure things out. Thanks for the help. BJ-Sk. Canada "Timothy Luders" <tjlud…@myrealbox.com> wrote in message

news:12dbk9zy3yg96$.dlg@tandelshome.attbi.invalid… – Hide quoted text — Show quoted text -> On Wed, 21 Jul 2004 19:18:41 -0400, janers wrote: > > Well gee, KCat and Sherry said it all.  Thanks from me too, cause that > > always confused me .. > > BJ, you sed rate might be up due to the Shingles too, did the doc mention > > that?  How are you feeling other wise?  Less pain? > > Let’s hope you start feeling better soon and things turn around for you. > > That stuff has to hurt and I am sure you already KNOW that one… > > Hang in there. > > janers > A complete guess here. You’re platelet production went up with the onset of > shingles. Now that you’re recovering the production has returned to you’re > normal so the average size is small (more older platelets). As I said just > a guess. At any rate it seems that lupus is not actively destroying > platelets at this time, a good thing. > Timothy

Response:

- Hide quoted text — Show quoted text -On Wed, 21 Jul 2004 20:18:13 -0600, BJ wrote: > That sounds like a reasonable explanation Timothy. The high platelet count > is a good thing, to be sure. I just like to try to figure things out. Thanks > for the help. > BJ-Sk. Canada > "Timothy Luders" <tjlud…@myrealbox.com> wrote in message > news:12dbk9zy3yg96$.dlg@tandelshome.attbi.invalid… >> On Wed, 21 Jul 2004 19:18:41 -0400, janers wrote: >>> Well gee, KCat and Sherry said it all.  Thanks from me too, cause that >>> always confused me .. >>> BJ, you sed rate might be up due to the Shingles too, did the doc > mention >>> that?  How are you feeling other wise?  Less pain? >>> Let’s hope you start feeling better soon and things turn around for you. >>> That stuff has to hurt and I am sure you already KNOW that one… >>> Hang in there. >>> janers >> A complete guess here. You’re platelet production went up with the onset > of >> shingles. Now that you’re recovering the production has returned to you’re >> normal so the average size is small (more older platelets). As I said just >> a guess. At any rate it seems that lupus is not actively destroying >> platelets at this time, a good thing. >> Timothy

Just remebering Linda’s first symptoms: ITP, bruises, very low platelet count (I don’t think quite as low as yours went), and all large. Timothy

Response:

How is Linda doing these days? Are you still enjoying your dancing? Hope all is well at your end. I get the bruising too, when my platelets get very low. It looks like someone splashed dark paint down my legs. I could actually see it spreading. Not a pretty sight. The pressure from sitting on the sofa would cause bleeding. Really weird! No risk of that now, thank goodness. Give my regards to Linda. It is always good to hear from you. BJ-Sk. Canada "Timothy Luders" <tjlud…@myrealbox.com> wrote in message

news:j9aeqvgk4yzr$.dlg@tandelshome.attbi.invalid… – Hide quoted text — Show quoted text -> On Wed, 21 Jul 2004 20:18:13 -0600, BJ wrote: > > That sounds like a reasonable explanation Timothy. The high platelet count > > is a good thing, to be sure. I just like to try to figure things out. Thanks > > for the help. > > BJ-Sk. Canada > > "Timothy Luders" <tjlud…@myrealbox.com> wrote in message > > news:12dbk9zy3yg96$.dlg@tandelshome.attbi.invalid… > >> On Wed, 21 Jul 2004 19:18:41 -0400, janers wrote: > >>> Well gee, KCat and Sherry said it all.  Thanks from me too, cause that > >>> always confused me .. > >>> BJ, you sed rate might be up due to the Shingles too, did the doc > > mention > >>> that?  How are you feeling other wise?  Less pain? > >>> Let’s hope you start feeling better soon and things turn around for you. > >>> That stuff has to hurt and I am sure you already KNOW that one… > >>> Hang in there. > >>> janers > >> A complete guess here. You’re platelet production went up with the onset > > of > >> shingles. Now that you’re recovering the production has returned to you’re > >> normal so the average size is small (more older platelets). As I said just > >> a guess. At any rate it seems that lupus is not actively destroying > >> platelets at this time, a good thing. > >> Timothy > Just remebering Linda’s first symptoms: ITP, bruises, very low platelet > count (I don’t think quite as low as yours went), and all large. > Timothy

Response:

- Hide quoted text — Show quoted text -On Thu, 22 Jul 2004 05:55:56 -0600, BJ wrote: > How is Linda doing these days? Are you still enjoying your dancing? Hope all > is well at your end. I get the bruising too, when my platelets get very low. > It looks like someone splashed dark paint down my legs. I could actually see > it spreading. Not a pretty sight. The pressure from sitting on the sofa > would cause bleeding. Really weird! No risk of that now, thank goodness. > Give my regards to Linda. It is always good to hear from you. > BJ-Sk. Canada > "Timothy Luders" <tjlud…@myrealbox.com> wrote in message > news:j9aeqvgk4yzr$.dlg@tandelshome.attbi.invalid… >> On Wed, 21 Jul 2004 20:18:13 -0600, BJ wrote: >>> That sounds like a reasonable explanation Timothy. The high platelet > count >>> is a good thing, to be sure. I just like to try to figure things out. > Thanks >>> for the help. >>> BJ-Sk. Canada >>> "Timothy Luders" <tjlud…@myrealbox.com> wrote in message >>> news:12dbk9zy3yg96$.dlg@tandelshome.attbi.invalid… >>>> On Wed, 21 Jul 2004 19:18:41 -0400, janers wrote: >>>>> Well gee, KCat and Sherry said it all.  Thanks from me too, cause that >>>>> always confused me .. >>>>> BJ, you sed rate might be up due to the Shingles too, did the doc >>> mention >>>>> that?  How are you feeling other wise?  Less pain? >>>>> Let’s hope you start feeling better soon and things turn around for > you. >>>>> That stuff has to hurt and I am sure you already KNOW that one… >>>>> Hang in there. >>>>> janers >>>> A complete guess here. You’re platelet production went up with the > onset >>> of >>>> shingles. Now that you’re recovering the production has returned to > you’re >>>> normal so the average size is small (more older platelets). As I said > just >>>> a guess. At any rate it seems that lupus is not actively destroying >>>> platelets at this time, a good thing. >>>> Timothy >> Just remebering Linda’s first symptoms: ITP, bruises, very low platelet >> count (I don’t think quite as low as yours went), and all large. >> Timothy

Would have replied last night BJ, but Linda and I were out square dancing. Have you’re legs cleared up? Linda’s have looked like the dark splashed paint for years now. She rarely goes out without having them covered (Oh, vanity LOL). Docs wanted to accuse me of abuse back then. They changed their tune rapidly when they saw how easily she "bruised". We’re waiting for an MRI and results on Monday. Kind of sitting on pins and needles right now. Will let you know. Linda had no appetite for the first half of this year and had lost a lot of weight. Problem seems to have gone away so we are hoping for the best. I’ll give you more details on Monday or Tuesday. Timothy

Response:

Hi Timothy, Yes, my legs look better, but I keep them covered too. Please do let my know about Linda’s MRI. I will be hoping for good news too. Tell Linda that. Glad to hear you are still out dancing. That is one of the best reason for a slow reply. <g> I like that. I still have the shingles lesions and pain after four weeks. I wonder if the immune suppressing drugs are slowing down the healing process. Oh well. Things have been worse. BJ-Sk. Canada "Timothy Luders" <tjlud…@myrealbox.com> wrote in message

news:iegu11q2uook$.dlg@tandelshome.attbi.invalid… – Hide quoted text — Show quoted text -> On Thu, 22 Jul 2004 05:55:56 -0600, BJ wrote: > > How is Linda doing these days? Are you still enjoying your dancing? Hope all > > is well at your end. I get the bruising too, when my platelets get very low. > > It looks like someone splashed dark paint down my legs. I could actually see > > it spreading. Not a pretty sight. The pressure from sitting on the sofa > > would cause bleeding. Really weird! No risk of that now, thank goodness. > > Give my regards to Linda. It is always good to hear from you. > > BJ-Sk. Canada > > "Timothy Luders" <tjlud…@myrealbox.com> wrote in message > > news:j9aeqvgk4yzr$.dlg@tandelshome.attbi.invalid… > >> On Wed, 21 Jul 2004 20:18:13 -0600, BJ wrote: > >>> That sounds like a reasonable explanation Timothy. The high platelet > > count > >>> is a good thing, to be sure. I just like to try to figure things out. > > Thanks > >>> for the help. > >>> BJ-Sk. Canada > >>> "Timothy Luders" <tjlud…@myrealbox.com> wrote in message > >>> news:12dbk9zy3yg96$.dlg@tandelshome.attbi.invalid… > >>>> On Wed, 21 Jul 2004 19:18:41 -0400, janers wrote: > >>>>> Well gee, KCat and Sherry said it all.  Thanks from me too, cause that > >>>>> always confused me .. > >>>>> BJ, you sed rate might be up due to the Shingles too, did the doc > >>> mention > >>>>> that?  How are you feeling other wise?  Less pain? > >>>>> Let’s hope you start feeling better soon and things turn around for > > you. > >>>>> That stuff has to hurt and I am sure you already KNOW that one… > >>>>> Hang in there. > >>>>> janers > >>>> A complete guess here. You’re platelet production went up with the > > onset > >>> of > >>>> shingles. Now that you’re recovering the production has returned to > > you’re > >>>> normal so the average size is small (more older platelets). As I said > > just > >>>> a guess. At any rate it seems that lupus is not actively destroying > >>>> platelets at this time, a good thing. > >>>> Timothy > >> Just remebering Linda’s first symptoms: ITP, bruises, very low platelet > >> count (I don’t think quite as low as yours went), and all large. > >> Timothy > Would have replied last night BJ, but Linda and I were out square dancing. > Have you’re legs cleared up? Linda’s have looked like the dark splashed > paint for years now. She rarely goes out without having them covered (Oh, > vanity LOL). Docs wanted to accuse me of abuse back then. They changed > their tune rapidly when they saw how easily she "bruised". > We’re waiting for an MRI and results on Monday. Kind of sitting on pins and > needles right now. Will let you know. Linda had no appetite for the first > half of this year and had lost a lot of weight. Problem seems to have gone > away so we are hoping for the best. I’ll give you more details on Monday or > Tuesday. > Timothy

Response:

Hi Everybody, I have last months lab results in my hand. What is the MPV? What is the significance of a below normal reading? There are my usual abnormal results, but this is a new one. My Sed rate is higher than usual at 67. Any ideas would be welcome. I am still in shingles pain, but the lesions are drying and don’t look so ruddy red. BJ-Sk. Canada

Response:

"BJ" <B…@sk.nojunk.ca> wrote in message

news:10ftl2c1410an8c@corp.supernews.com… > Hi Everybody, > I have last months lab results in my hand. What is the MPV? What is the > significance of a below normal reading? There are my usual abnormal results, > but this is a new one. My Sed rate is higher than usual at 67. Any ideas > would be welcome. I am still in shingles pain, but the lesions are drying > and don’t look so ruddy red. > BJ-Sk. Canada

From "Lab Tests Online"  http://www.labtestsonline.org/ "The platelet count is the number of platelets in a given volume of blood. Both increases and decreases can point to abnormal conditions of excess bleeding or clotting. Depending on the laboratory’s report forms, platelets are reported as thousands in a microliter of blood (150,000/

Question:

In article <4098B2BE.EED5E…@execulink.com>, J <MeanM…@anon.anon> wrote [ >My >"multi-tasking" skills aren't what they used to be.

Mine neither! -- Andy Taylor [Chair, N E Lupus Group] See http://www.northeastlupus.org.uk for more!

Response:

Sometimes one or more posters posts to this newsgroup and don’t really belong here. To avoid upsets, block them, so you never see their messages. Do not reply to the persons mentioned in these "block messages" posts. It just makes things worse. How to Block Senders in Outlook Express Highlight/select the post. click on ‘message’ between ‘tools and help’ at the top of OE… then click on block sender… from there it is automatically done… it asks you if you want all their messages deleted right now (yes or no) and voila…you will never see another message from that sender. or if doing it the long way of typing (or copying and pasting), block the following poster: poster name:     doe posting e-mail : ironjust…@aol.comdoe and poster name: spam2death email address: spam2de…@comcast.com (followed me from another newsgroup where he has an issue with me and their Newsgroup Charter) For those using Netscape, in my (version of) Netscape, it’s Edit, Message Filters on the menu at the top of the message window. J bcc: a number of people.

Response:

J wrote: > poster name: spam2death > email address: spam2de…@comcast.com

I’d like to apologize and retract this part. Seems like he is here for a valid reason. J

Response:

In article <40984BC7.4010…@execulink.com>, J <MeanM…@anon.anon> wrote [ >I'd like to apologize and retract this part. >Seems like he is here for a valid reason. >J

PBKAC! -- Andy Taylor [Chair, N E Lupus Group] See http://www.northeastlupus.org.uk for more!

Response:

Andy wrote: > In article , J <MeanM…@anon.anon>wrote > >I’d like to apologize and retract this part. > >Seems like he is here for a valid reason. > >J > PBKAC!

If you mean the mistake posts in the a.m. yes. I was  "nodding off"  and thinking about how to try to solve  problems on the other newsgroup yet be here to catch up with people here I care a lot about and was going to reply to someone here, and forgot what I was going to do on each. My "multi-tasking" skills aren’t what they used to be. Got a spare brain? mine’s in overload ! and that’s not iron J

Response:

Question:

Beverley wrote:

<snip> > With a chook, chook here, and a chook, chook there, here a chook, there a > chook, everywhere a chook, chook. > Bev

LOL!  Good one! -Sharon — Clear your mind, relax and float downstream.

Response:

i would think a mozz – quito??? maybe?? Shelagh  Co-ordinator Of Valley-Lupus – Invisible in Plain Sight http://www3.telus.net/valleylupus/index.html Subgroup of BC Lupus Society and Lupus Canada Email: valleylu…@telus.net "Beverley" <pottings…@sybercom.net> wrote in message

news:ulpsca2qrjqpf9@corp.supernews.com… – Hide quoted text — Show quoted text -> What is a mozzie? > Bev > "Lyndal Parker-Newlyn and Phill Newlyn" <l.p.new…@bigpond.com> wrote in > message news:qPU69.7005$g9.23936@newsfeeds.bigpond.com… > > That is interesting…and so gross!!! > > What is really odd with all our bite reactions, I got bitten by a red back > > spider last year (nasty little buggers, can be fatal for babies or dogs, > > make adults pretty sick) – and I had a usual reaction from the > > envenomation – fevers diarrhoea pain sweats glands up etc.  but it was all > > textbook – no over-reaction no need for antivenom and I was OK in 24 > > hours…Very typical and unexciting!! > > So I may hate mozzies and sand flies, but I can handle the big guns!! > > Lyndal > > "Beverley" <pottings…@sybercom.net> wrote in message > > news:ulhul83ke41091@corp.supernews.com… > > > I’ve sat through plenty of entomology lectures to pick up on a few > > things – > > > so I have lots of normally useless but interesting information on bugs > in > > my > > > brain. So here goes my version of why we react to so many insect > > > bites/stings. > > > The biggest thing is they are dirty. And our skin is dirty to they go > > > plunging that darn stinger in us and who knows where it was last? So all > > > kinds of bacteria, fungus and just plain dirt gets dragged into the > lower > > > layers of skin. Most stings and bites such as from the mosquito contain > a > > > chemical that prevents coagulation of the blood. If they didn’t inject > > that > > > into their prey they would never be able to pull their body part back > out. > > > Some of us "lucky ones" are allergic to the chemical they pump into our > > > bodies. > > > Certain ants have the same basic chemical which is excreted through > their > > > mouth parts as bees have in their stingers so that is why many of us > have > > > nasty reactions to ant bites. The main difference is ants insert much > less > > > than a bee. But enough ant bites could produce the same violent > reactions > > as > > > seen with a bee sting. The common red ant IIRC is closest to bee venom. > > > Now, this is really gross but do you know why fly bites are so bad and > > often > > > cause severe reactions? They are probably the dirtiest of all the bites. > > > Flies do not have intestines or an anus. They eat, digest their food and > > > what is leftover is vomited back up. That is the cause of "fly spots" on > > > windows, lamps, etc. This feces laced with a whole lot of digestive > juices > > > are vomited back up just prior to taking a bite. This way the bite is > > > slightly pre-digested so you can imagine how strong these digestive > juices > > > really are. So we get a chunk of skin removed and all around that hole > in > > > our covering is fly poop and digestive juices. And only god knows what > the > > > fly was eating before he took a bite of us? Dog poop, old garbage, > > squashed > > > slug, etc. > > > Humans tend to think of themselves at the top of the food chain when in > > > actuality we are just food for flies, and other insects. Their job is to > > > recycle us back into the dust from which we came. > > > Bev > > > "CSP" <csper…@juno.com> wrote in message > > > news:GmZ59.7348$uO4.4868@nwrddc01.gnilink.net… > > > > I’m one of those people, too.  A  recent fly bite (not mosquito, but > > > > housefly) made my whole shin/calf turn pink and hot.  Mosquitoes … > > > spiders > > > > … chiggers … fleas … deer flies … fire ants (from the Deep > > South) > > > > … anything of that sort will do the same and more.  Wasp and bee > > stings > > > > are a couple of rungs higher though I have not experienced a life > > > > threatening reaction and hope I never do.  This happens to no one else > > in > > > > the family except my teenage daughter and myself.  (All of us have > > pollen > > > > allergies, though … year round.) > > > > CP > > > > "J Rogow" <JRo…@Newsguy.com> wrote in message > > > > news:aj74u40imn@enews1.newsguy.com… > > > > > Have you even noticed how many of us are allergic to bee stings > > > > > and other insect "bites"?

Response:

Hello everyone, I went to play golf today. The first time in about three weeks.  On the third hole I was looking for my ball and brushed against a cedar tree. I was attacked by wasp or yellow jackets.  Got bit twice. Once on the finger and once on the neck.. I am okay, but I am a little bit allergic to wasp and so I came home early.  I am thinking now that it was a yellow jacket as I think that with the wasp I would be having more pain and the areas would be swollen more. A mosquito bite on my face can cause my eyes to swell shut. I was a little worried about the sting on my neck. Shoot my finger hurts worse than the neck.  I took my benadryl and took a nap.  I am just dissappointed that  I missed golfing.  Oh well Sunday is almost over.  Have a great evening. Cindy

Response:

Cindy, Gee, I thought that I was alone with all the swelling that even a pesty little mosquito causes.  Was always afraid of a sting of a bee.wasp, yellow jacket because of it.  Discovered that they hurt like the dickens and the swelling from a sting on the hand caused lots of swelling and even my lymph nodes in the armpits swelled. So I sure can sympathize with you.  Hope that the benadryl continues to keep the reaction to a min. and that you enjoy what is left of this Sunday. Hugs, Sherry

Response:

Have you even noticed how many of us are allergic to bee stings and other insect "bites"? "Eleanor" <ehur…@elp.rr.com> wrote in message

news:NTC59.77023$Yd.3462726@twister.austin.rr.com… – Hide quoted text — Show quoted text -> Cindy, > Gee, I thought that I was alone with all the swelling that even a pesty > little mosquito causes.  Was always afraid of a sting of a bee.wasp, yellow > jacket because of it.  Discovered that they hurt like the dickens and the > swelling from a sting on the hand caused lots of swelling and even my lymph > nodes in the armpits swelled. > So I sure can sympathize with you.  Hope that the benadryl continues to keep > the reaction to a min. and that you enjoy what is left of this Sunday. > Hugs, > Sherry

Response:

I have discovered that many on this group have the same reactions to insect bites and stings.  Also a lot of other "problems" we seem to share or have in common that aren’t listed as part of the Lupus.

Response:

I think the body is so happy to have something legitimate to attack it just goes nuts! Bev "Eleanor" <ehur…@elp.rr.com> wrote in message

news:jOG59.77430$Yd.3511575@twister.austin.rr.com… – Hide quoted text — Show quoted text -> I have discovered that many on this group have the same reactions to insect > bites and stings.  Also a lot of other "problems" we seem to share or have > in common that aren’t listed as part of the Lupus.

Response:

Cindy, Be careful you could still have a serious reaction. Keep the benadryl handy but be prepared in case you have to make an ER trip. I really hope you called or saw a doctor today. Bev "Cindy" <cmath…@cox.net> wrote in message

news:SiC59.21802$SE1.1026@news1.central.cox.net… – Hide quoted text — Show quoted text -> Hello everyone, > I went to play golf today. The first time in about three weeks.  On the > third hole I was looking for my ball and brushed against a cedar tree. I was > attacked by wasp or yellow jackets.  Got bit twice. Once on the finger and > once on the neck.. I am okay, but I am a little bit allergic to wasp and so > I came home early.  I am thinking now that it was a yellow jacket as I think > that with the wasp I would be having more pain and the areas would be > swollen more. A mosquito bite on my face can cause my eyes to swell shut. I > was a little worried about the sting on my neck. Shoot my finger hurts worse > than the neck.  I took my benadryl and took a nap.  I am just dissappointed > that  I missed golfing.  Oh well > Sunday is almost over.  Have a great evening. > Cindy

Response:

I’m one of those people, too.  A  recent fly bite (not mosquito, but housefly) made my whole shin/calf turn pink and hot.  Mosquitoes … spiders … chiggers … fleas … deer flies … fire ants (from the Deep South) … anything of that sort will do the same and more.  Wasp and bee stings are a couple of rungs higher though I have not experienced a life threatening reaction and hope I never do.  This happens to no one else in the family except my teenage daughter and myself.  (All of us have pollen allergies, though … year round.) CP "J Rogow" <JRo…@Newsguy.com> wrote in message

news:aj74u40imn@enews1.newsguy.com… – Hide quoted text — Show quoted text -> Have you even noticed how many of us are allergic to bee stings > and other insect "bites"?

Response:

I think that I am going to be fine. But this sting on the tip of my pointer finger is driving me crazy. The tip of my finger is red and swollen.  But I’ve been putting stuff on it and I will be okay. But I will keep my benadryl handy. Thanks Cindy "Beverley" <pottings…@sybercom.net> wrote in message

news:ulgaos5cmscbf9@corp.supernews.com… – Hide quoted text — Show quoted text -> Cindy, Be careful you could still have a serious reaction. Keep the benadryl > handy but be prepared in case you have to make an ER trip. I really hope you > called or saw a doctor today. > Bev > "Cindy" <cmath…@cox.net> wrote in message > news:SiC59.21802$SE1.1026@news1.central.cox.net… > > Hello everyone, > > I went to play golf today. The first time in about three weeks.  On the > > third hole I was looking for my ball and brushed against a cedar tree. I > was > > attacked by wasp or yellow jackets.  Got bit twice. Once on the finger and > > once on the neck.. I am okay, but I am a little bit allergic to wasp and > so > > I came home early.  I am thinking now that it was a yellow jacket as I > think > > that with the wasp I would be having more pain and the areas would be > > swollen more. A mosquito bite on my face can cause my eyes to swell shut. > I > > was a little worried about the sting on my neck. Shoot my finger hurts > worse > > than the neck.  I took my benadryl and took a nap.  I am just > dissappointed > > that  I missed golfing.  Oh well > > Sunday is almost over.  Have a great evening. > > Cindy

Response:

Just remember this gal keeps chooks in her backyard. Which I believe are chickens but not entirely positive. We both speak English yet neither one of them belongs to the Queen. They have their slang and we have ours. With a chook, chook here, and a chook, chook there, here a chook, there a chook, everywhere a chook, chook. Bev "Shelagh" <valleylu…@telus.net> wrote in message

news:zgg79.797$1L4.86190@news1.telusplanet.net… – Hide quoted text — Show quoted text -> i would think a mozz – quito??? > maybe?? > Shelagh  Co-ordinator Of > Valley-Lupus – Invisible in Plain Sight > http://www3.telus.net/valleylupus/index.html > Subgroup of BC Lupus Society and Lupus Canada > Email: valleylu…@telus.net > "Beverley" <pottings…@sybercom.net> wrote in message > news:ulpsca2qrjqpf9@corp.supernews.com… > > What is a mozzie? > > Bev > > "Lyndal Parker-Newlyn and Phill Newlyn" <l.p.new…@bigpond.com> wrote > in > > message news:qPU69.7005$g9.23936@newsfeeds.bigpond.com… > > > That is interesting…and so gross!!! > > > What is really odd with all our bite reactions, I got bitten by a > red back > > > spider last year (nasty little buggers, can be fatal for babies or > dogs, > > > make adults pretty sick) – and I had a usual reaction from the > > > envenomation – fevers diarrhoea pain sweats glands up etc.  but it > was all > > > textbook – no over-reaction no need for antivenom and I was OK in 24 > > > hours…Very typical and unexciting!! > > > So I may hate mozzies and sand flies, but I can handle the big > guns!! > > > Lyndal > > > "Beverley" <pottings…@sybercom.net> wrote in message > > > news:ulhul83ke41091@corp.supernews.com… > > > > I’ve sat through plenty of entomology lectures to pick up on a few > > > things – > > > > so I have lots of normally useless but interesting information on > bugs > > in > > > my > > > > brain. So here goes my version of why we react to so many insect > > > > bites/stings. > > > > The biggest thing is they are dirty. And our skin is dirty to they > go > > > > plunging that darn stinger in us and who knows where it was last? > So all > > > > kinds of bacteria, fungus and just plain dirt gets dragged into > the > > lower > > > > layers of skin. Most stings and bites such as from the mosquito > contain > > a > > > > chemical that prevents coagulation of the blood. If they didn’t > inject > > > that > > > > into their prey they would never be able to pull their body part > back > > out. > > > > Some of us "lucky ones" are allergic to the chemical they pump > into our > > > > bodies. > > > > Certain ants have the same basic chemical which is excreted > through > > their > > > > mouth parts as bees have in their stingers so that is why many of > us > > have > > > > nasty reactions to ant bites. The main difference is ants insert > much > > less > > > > than a bee. But enough ant bites could produce the same violent > > reactions > > > as > > > > seen with a bee sting. The common red ant IIRC is closest to bee > venom. > > > > Now, this is really gross but do you know why fly bites are so bad > and > > > often > > > > cause severe reactions? They are probably the dirtiest of all the > bites. > > > > Flies do not have intestines or an anus. They eat, digest their > food and > > > > what is leftover is vomited back up. That is the cause of "fly > spots" on > > > > windows, lamps, etc. This feces laced with a whole lot of > digestive > > juices > > > > are vomited back up just prior to taking a bite. This way the bite > is > > > > slightly pre-digested so you can imagine how strong these > digestive > > juices > > > > really are. So we get a chunk of skin removed and all around that > hole > > in > > > > our covering is fly poop and digestive juices. And only god knows > what > > the > > > > fly was eating before he took a bite of us? Dog poop, old garbage, > > > squashed > > > > slug, etc. > > > > Humans tend to think of themselves at the top of the food chain > when in > > > > actuality we are just food for flies, and other insects. Their job > is to > > > > recycle us back into the dust from which we came. > > > > Bev > > > > "CSP" <csper…@juno.com> wrote in message > > > > news:GmZ59.7348$uO4.4868@nwrddc01.gnilink.net… > > > > > I’m one of those people, too.  A  recent fly bite (not mosquito, > but > > > > > housefly) made my whole shin/calf turn pink and hot.  Mosquitoes > … > > > > spiders > > > > > … chiggers … fleas … deer flies … fire ants (from the > Deep > > > South) > > > > > … anything of that sort will do the same and more.  Wasp and > bee > > > stings > > > > > are a couple of rungs higher though I have not experienced a > life > > > > > threatening reaction and hope I never do.  This happens to no > one else > > > in > > > > > the family except my teenage daughter and myself.  (All of us > have > > > pollen > > > > > allergies, though … year round.) > > > > > CP > > > > > "J Rogow" <JRo…@Newsguy.com> wrote in message > > > > > news:aj74u40imn@enews1.newsguy.com… > > > > > > Have you even noticed how many of us are allergic to bee > stings > > > > > > and other insect "bites"?

Response:

Lyndal My brother’s having an awful time for month or more now.  E-mailed me. Some infestation at work.  I’ve just spent last 24 hours or so trying to find on the ‘net what it could be. I’m really concerned, about the way he’s treating it, spraying chlorine on his legs, clothes , arms, etc, because it’s so distracting at work. Latest is he reports headaches (which is very unusual for him).  Ever gotten headaches from bug bites? I guess I’m concerned that this new job (and the added stress of these bug bites which turn into sores) are going to send him into a flare.  And since he’s not yet been diagnosed with Lupus, he (and his doctor) wouldn’t even recognize a flare. Thoughts? J Lyndal Parker-Newlyn and Phill Newlyn wrote: – Hide quoted text — Show quoted text -> That is interesting…and so gross!!! > What is really odd with all our bite reactions, I got bitten by a red back > spider last year (nasty little buggers, can be fatal for babies or dogs, > make adults pretty sick) – and I had a usual reaction from the > envenomation – fevers diarrhoea pain sweats glands up etc.  but it was all > textbook – no over-reaction no need for antivenom and I was OK in 24 > hours…Very typical and unexciting!!

Response:

What is a mozzie? Bev "Lyndal Parker-Newlyn and Phill Newlyn" <l.p.new…@bigpond.com> wrote in message news:qPU69.7005$g9.23936@newsfeeds.bigpond.com… – Hide quoted text — Show quoted text -> That is interesting…and so gross!!! > What is really odd with all our bite reactions, I got bitten by a red back > spider last year (nasty little buggers, can be fatal for babies or dogs, > make adults pretty sick) – and I had a usual reaction from the > envenomation – fevers diarrhoea pain sweats glands up etc.  but it was all > textbook – no over-reaction no need for antivenom and I was OK in 24 > hours…Very typical and unexciting!! > So I may hate mozzies and sand flies, but I can handle the big guns!! > Lyndal > "Beverley" <pottings…@sybercom.net> wrote in message > news:ulhul83ke41091@corp.supernews.com… > > I’ve sat through plenty of entomology lectures to pick up on a few > things – > > so I have lots of normally useless but interesting information on bugs in > my > > brain. So here goes my version of why we react to so many insect > > bites/stings. > > The biggest thing is they are dirty. And our skin is dirty to they go > > plunging that darn stinger in us and who knows where it was last? So all > > kinds of bacteria, fungus and just plain dirt gets dragged into the lower > > layers of skin. Most stings and bites such as from the mosquito contain a > > chemical that prevents coagulation of the blood. If they didn’t inject > that > > into their prey they would never be able to pull their body part back out. > > Some of us "lucky ones" are allergic to the chemical they pump into our > > bodies. > > Certain ants have the same basic chemical which is excreted through their > > mouth parts as bees have in their stingers so that is why many of us have > > nasty reactions to ant bites. The main difference is ants insert much less > > than a bee. But enough ant bites could produce the same violent reactions > as > > seen with a bee sting. The common red ant IIRC is closest to bee venom. > > Now, this is really gross but do you know why fly bites are so bad and > often > > cause severe reactions? They are probably the dirtiest of all the bites. > > Flies do not have intestines or an anus. They eat, digest their food and > > what is leftover is vomited back up. That is the cause of "fly spots" on > > windows, lamps, etc. This feces laced with a whole lot of digestive juices > > are vomited back up just prior to taking a bite. This way the bite is > > slightly pre-digested so you can imagine how strong these digestive juices > > really are. So we get a chunk of skin removed and all around that hole in > > our covering is fly poop and digestive juices. And only god knows what the > > fly was eating before he took a bite of us? Dog poop, old garbage, > squashed > > slug, etc. > > Humans tend to think of themselves at the top of the food chain when in > > actuality we are just food for flies, and other insects. Their job is to > > recycle us back into the dust from which we came. > > Bev > > "CSP" <csper…@juno.com> wrote in message > > news:GmZ59.7348$uO4.4868@nwrddc01.gnilink.net… > > > I’m one of those people, too.  A  recent fly bite (not mosquito, but > > > housefly) made my whole shin/calf turn pink and hot.  Mosquitoes … > > spiders > > > … chiggers … fleas … deer flies … fire ants (from the Deep > South) > > > … anything of that sort will do the same and more.  Wasp and bee > stings > > > are a couple of rungs higher though I have not experienced a life > > > threatening reaction and hope I never do.  This happens to no one else > in > > > the family except my teenage daughter and myself.  (All of us have > pollen > > > allergies, though … year round.) > > > CP > > > "J Rogow" <JRo…@Newsguy.com> wrote in message > > > news:aj74u40imn@enews1.newsguy.com… > > > > Have you even noticed how many of us are allergic to bee stings > > > > and other insect "bites"?

Response:

"Andy" <a…@kitzbuhel.demon.co.uk> wrote in message

news:nE$xlwB+4PW9EwJ6@kitzbuhel.demon.co.uk… > In article <ulhul83ke41…@corp.supernews.com>, Beverley > <pottings…@sybercom.net> wrote > [ > >Humans tend to think of themselves at the top of the food chain > (Nonsense: cats are)

I see you've met the Siamese!

Response:

That is interesting...and so gross!!! What is really odd with all our bite reactions, I got bitten by a red back spider last year (nasty little buggers, can be fatal for babies or dogs, make adults pretty sick) - and I had a usual reaction from the envenomation - fevers diarrhoea pain sweats glands up etc.  but it was all textbook - no over-reaction no need for antivenom and I was OK in 24 hours...Very typical and unexciting!! So I may hate mozzies and sand flies, but I can handle the big guns!! Lyndal "Beverley" <pottings...@sybercom.net> wrote in message

news:ulhul83ke41091@corp.supernews.com... - Hide quoted text -- Show quoted text -> I've sat through plenty of entomology lectures to pick up on a few things - > so I have lots of normally useless but interesting information on bugs in my > brain. So here goes my version of why we react to so many insect > bites/stings. > The biggest thing is they are dirty. And our skin is dirty to they go > plunging that darn stinger in us and who knows where it was last? So all > kinds of bacteria, fungus and just plain dirt gets dragged into the lower > layers of skin. Most stings and bites such as from the mosquito contain a > chemical that prevents coagulation of the blood. If they didn't inject that > into their prey they would never be able to pull their body part back out. > Some of us "lucky ones" are allergic to the chemical they pump into our > bodies. > Certain ants have the same basic chemical which is excreted through their > mouth parts as bees have in their stingers so that is why many of us have > nasty reactions to ant bites. The main difference is ants insert much less > than a bee. But enough ant bites could produce the same violent reactions as > seen with a bee sting. The common red ant IIRC is closest to bee venom. > Now, this is really gross but do you know why fly bites are so bad and often > cause severe reactions? They are probably the dirtiest of all the bites. > Flies do not have intestines or an anus. They eat, digest their food and > what is leftover is vomited back up. That is the cause of "fly spots" on > windows, lamps, etc. This feces laced with a whole lot of digestive juices > are vomited back up just prior to taking a bite. This way the bite is > slightly pre-digested so you can imagine how strong these digestive juices > really are. So we get a chunk of skin removed and all around that hole in > our covering is fly poop and digestive juices. And only god knows what the > fly was eating before he took a bite of us? Dog poop, old garbage, squashed > slug, etc. > Humans tend to think of themselves at the top of the food chain when in > actuality we are just food for flies, and other insects. Their job is to > recycle us back into the dust from which we came. > Bev > "CSP" <csper...@juno.com> wrote in message > news:GmZ59.7348$uO4.4868@nwrddc01.gnilink.net... > > I'm one of those people, too.  A  recent fly bite (not mosquito, but > > housefly) made my whole shin/calf turn pink and hot.  Mosquitoes ... > spiders > > ... chiggers ... fleas ... deer flies ... fire ants (from the Deep South) > > ... anything of that sort will do the same and more.  Wasp and bee stings > > are a couple of rungs higher though I have not experienced a life > > threatening reaction and hope I never do.  This happens to no one else in > > the family except my teenage daughter and myself.  (All of us have pollen > > allergies, though ... year round.) > > CP > > "J Rogow" <JRo...@Newsguy.com> wrote in message > > news:aj74u40imn@enews1.newsguy.com... > > > Have you even noticed how many of us are allergic to bee stings > > > and other insect "bites"?

Response:

In article <ulhul83ke41...@corp.supernews.com>, Beverley <pottings...@sybercom.net> wrote [ >Humans tend to think of themselves at the top of the food chain

(Nonsense: cats are) >when in >actuality we are just food for flies, and other insects. Their job is to >recycle us back into the dust from which we came. >Bev

Yeah, but not while I'm still alive. -- Andy [Editor, Austrian Philatelic Society] For Austrian philately <URL:http://www.kitzbuhel.demon.co.uk/austamps> For Lupus <URL:http://www.kitzbuhel.demon.co.uk/lupus> For my other interests <URL:http://www.kitzbuhel.demon.co.uk>

Response:

I’ve sat through plenty of entomology lectures to pick up on a few things – so I have lots of normally useless but interesting information on bugs in my brain. So here goes my version of why we react to so many insect bites/stings. The biggest thing is they are dirty. And our skin is dirty to they go plunging that darn stinger in us and who knows where it was last? So all kinds of bacteria, fungus and just plain dirt gets dragged into the lower layers of skin. Most stings and bites such as from the mosquito contain a chemical that prevents coagulation of the blood. If they didn’t inject that into their prey they would never be able to pull their body part back out. Some of us "lucky ones" are allergic to the chemical they pump into our bodies. Certain ants have the same basic chemical which is excreted through their mouth parts as bees have in their stingers so that is why many of us have nasty reactions to ant bites. The main difference is ants insert much less than a bee. But enough ant bites could produce the same violent reactions as seen with a bee sting. The common red ant IIRC is closest to bee venom. Now, this is really gross but do you know why fly bites are so bad and often cause severe reactions? They are probably the dirtiest of all the bites. Flies do not have intestines or an anus. They eat, digest their food and what is leftover is vomited back up. That is the cause of "fly spots" on windows, lamps, etc. This feces laced with a whole lot of digestive juices are vomited back up just prior to taking a bite. This way the bite is slightly pre-digested so you can imagine how strong these digestive juices really are. So we get a chunk of skin removed and all around that hole in our covering is fly poop and digestive juices. And only god knows what the fly was eating before he took a bite of us? Dog poop, old garbage, squashed slug, etc. Humans tend to think of themselves at the top of the food chain when in actuality we are just food for flies, and other insects. Their job is to recycle us back into the dust from which we came. Bev "CSP" <csper…@juno.com> wrote in message

news:GmZ59.7348$uO4.4868@nwrddc01.gnilink.net… – Hide quoted text — Show quoted text -> I’m one of those people, too.  A  recent fly bite (not mosquito, but > housefly) made my whole shin/calf turn pink and hot.  Mosquitoes … spiders > … chiggers … fleas … deer flies … fire ants (from the Deep South) > … anything of that sort will do the same and more.  Wasp and bee stings > are a couple of rungs higher though I have not experienced a life > threatening reaction and hope I never do.  This happens to no one else in > the family except my teenage daughter and myself.  (All of us have pollen > allergies, though … year round.) > CP > "J Rogow" <JRo…@Newsguy.com> wrote in message > news:aj74u40imn@enews1.newsguy.com… > > Have you even noticed how many of us are allergic to bee stings > > and other insect "bites"?

Response:

Question:

I started taking 100mg of DHEA close to three months ago.  I saw an AMAZING (within days) improvement in my skin (I have horrible inflamation on my hands and fingers) as well as a decrease in joint pain.  I also take prednisone.I have been trying to wean me off it for over a year now).  The DHEA allowed me to lower my dose AND feel better.  However, the skin on my face became extremely oily and I ended up with moderate acne.  I also noticed an increae in facial hair.  I stopped the DHEA and have noticed all my face problems have gone away, but the joint pain is back again.  Trying to figure out which I want to live with less. Janet

Response:

Sounds like the DHEA was very helpful.  Maybe you’d be able to get around the oily skin side effect by using some skin care products to control it.  That’s what my daughter does.  She also takes 100 mg. of DHEA per day and has the same side effect which she keeps under good control in the way I suggested above. We feel though that benefits she’s getting are worth it.   Sandra

Response:

Hi  I had a similar reaction as tg but at home vomiting and feeling very bad and all I took was 25 mg for a couple days.  I did try again bout a month later with the same results so gave up. It always amazes me how differently we all react to things  Our bodies and Lupus are amazing things. Cindy – Hide quoted text — Show quoted text -tg wrote: > I started at 25mg daily for 3 days.  On the fourth day I kicked it up to > 50mg and I was so sick and practically having convulsions.  I went to the > emergency room.   I was hyperventilating and it was terrible.  I finally > vomited and started feeling better. > I’ve heard of a similar story to mine with DHEA, so although it might be > perfect for some, use with caution.  Besides, you should be careful with > anything in this category and consider it’s long-term effects, seeing as > though you wouldn’t want it for a quick short term fix anyway. > Good luck.   Personally, I’ve been looking into all the adaptogenic herbs > for my autoimmune disorder (not quite lupus but this is a good general group > here).   Check out alt.folklore.herbs for a recent anti-inflammatory post of > mine. > "MADKELLY" <madke…@aol.com> wrote in message > news:20001116191657.06100.00000187@ng-ck1.aol.com… > > Just wondering if anyone with this ng has had personal experience with > DHEA as > > the major treatment for lupus.  Since plaquenil is not an option (sight > loss), > > and quinacrine is slowly become a non-option as well (long story), I have > to > > decide whether to finally go on prednisone or try DHEA.  I look at pred as > a > > last resort because of the damage it inflicts.  [Now, don't get all > offended if > > you're on pred and happy.  I'm basing my opinion on personal experience > and do > > not wish to challenge your treatment!]  Soooooooooo, I’ve been researching > DHEA > > (dehydroepiandrosterone) and following Genelabs Aslera trials.  I > appreciate > > any input you might have. > > to our health > > kelly

Response:

Kelly, I have been taking DHEA for about 6 months.  I definitely think it has helped me in more ways than one.  I strongly recommend it, especially for men. George – Hide quoted text — Show quoted text -MADKELLY wrote: > Just wondering if anyone with this ng has had personal experience with DHEA as > the major treatment for lupus.  Since plaquenil is not an option (sight loss), > and quinacrine is slowly become a non-option as well (long story), I have to > decide whether to finally go on prednisone or try DHEA.  I look at pred as a > last resort because of the damage it inflicts.  [Now, don't get all offended if > you're on pred and happy.  I'm basing my opinion on personal experience and do > not wish to challenge your treatment!]  Soooooooooo, I’ve been researching DHEA > (dehydroepiandrosterone) and following Genelabs Aslera trials.  I appreciate > any input you might have. > to our health > kelly

Response:

I started at 25mg daily for 3 days.  On the fourth day I kicked it up to 50mg and I was so sick and practically having convulsions.  I went to the emergency room.   I was hyperventilating and it was terrible.  I finally vomited and started feeling better. I’ve heard of a similar story to mine with DHEA, so although it might be perfect for some, use with caution.  Besides, you should be careful with anything in this category and consider it’s long-term effects, seeing as though you wouldn’t want it for a quick short term fix anyway. Good luck.   Personally, I’ve been looking into all the adaptogenic herbs for my autoimmune disorder (not quite lupus but this is a good general group here).   Check out alt.folklore.herbs for a recent anti-inflammatory post of mine. "MADKELLY" <madke…@aol.com> wrote in message

news:20001116191657.06100.00000187@ng-ck1.aol.com… – Hide quoted text — Show quoted text -> Just wondering if anyone with this ng has had personal experience with DHEA as > the major treatment for lupus.  Since plaquenil is not an option (sight loss), > and quinacrine is slowly become a non-option as well (long story), I have to > decide whether to finally go on prednisone or try DHEA.  I look at pred as a > last resort because of the damage it inflicts.  [Now, don't get all offended if > you're on pred and happy.  I'm basing my opinion on personal experience and do > not wish to challenge your treatment!]  Soooooooooo, I’ve been researching DHEA > (dehydroepiandrosterone) and following Genelabs Aslera trials.  I appreciate > any input you might have. > to our health > kelly

Response:

My daughter takes 100 mg. of DHEA per day as prescribed by her rheumatologist. Based on our personal experience as well as studies I’ve read, it appears to help with decreasing some of the symptoms of lupus.  However, it’s not a stand alone medication.  It’s actually more supplemental.  Therefore, while I personally think taking DHEA is not a bad idea, it’s not something you can take instead of other lupus medication.  I believe this is also the case with GL701, the new DHEA derivative approved for lupus treatment.   Sandra

Response:

Yes, DHEA is very useful.  I used for over a year with good results. There’s a new book out, however, that I think you’ll be wanting to pick up. Its called "Lupus: Alternative Therapies that Work" by Sharon Moore.  Check it out.  I think it will help a lot. Good luck, Katie "MADKELLY" <madke…@aol.com> wrote in message

news:20001116191657.06100.00000187@ng-ck1.aol.com… – Hide quoted text — Show quoted text -> Just wondering if anyone with this ng has had personal experience with DHEA as > the major treatment for lupus.  Since plaquenil is not an option (sight loss), > and quinacrine is slowly become a non-option as well (long story), I have to > decide whether to finally go on prednisone or try DHEA.  I look at pred as a > last resort because of the damage it inflicts.  [Now, don't get all offended if > you're on pred and happy.  I'm basing my opinion on personal experience and do > not wish to challenge your treatment!]  Soooooooooo, I’ve been researching DHEA > (dehydroepiandrosterone) and following Genelabs Aslera trials.  I appreciate > any input you might have. > to our health > kelly

Response:

Just wondering if anyone with this ng has had personal experience with DHEA as the major treatment for lupus.  Since plaquenil is not an option (sight loss), and quinacrine is slowly become a non-option as well (long story), I have to decide whether to finally go on prednisone or try DHEA.  I look at pred as a last resort because of the damage it inflicts.  [Now, don't get all offended if you're on pred and happy.  I'm basing my opinion on personal experience and do not wish to challenge your treatment!]  Soooooooooo, I’ve been researching DHEA (dehydroepiandrosterone) and following Genelabs Aslera trials.  I appreciate any input you might have. to our health kelly

Response:

Question:

Sounds like someones Lic plate don’t it, it’s the new drug being tested for lupies… I’m trying to post the darn article. Mary/az

Response:

Mary~~~~~I’m trying to find anything on the net about the LJP394, and so far can’t get anywhere.  Any suggestions? Thanks, KimIn article <39CFD9DB.4DCAE…@yahoo.com>,   maryspe…@yahoo.com wrote: > Sounds like someones Lic plate don’t it, it’s the new drug > being tested for lupies… I’m trying to post the darn > article. > Mary/az

Sent via Deja.com http://www.deja.com/ Before you buy.

Response:

For anyone who wants to read the article on LJP394 go to the chronic illness house web site, i tried to send it to our lupus ng but I guess I’m not doing it right cause it keeps coming back undeliverable? Anyone got any suggestions on how to send it? Let me know… Mary/az

Response:

Question:

My ANA numbers came back at 1:2560.   Is this typical for others with Lupus?  Higher than most?  Lower than most? I don’t know anyone else to ask. Thanks, George

Response:

George Parton wrote: > My ANA numbers came back at 1:2560. > Is this typical for others with Lupus?  Higher than most?  Lower than > most? > I don’t know anyone else to ask. > Thanks, > George

Have you been diagnosed with lupus? mine has been 1280 for 8 months, had every other auto-immune test and they all came back negative, 3 docs cant come up with any answers, I was real sick with stomach inflamation and weight loss 8 months ago, but, have been fine since. I wonder if I could have genetically inhereted the ana from my mother who has severe rhuuemetoid arthritis. people tell me that 1280 is high, so I guess 2560 is high too. Do you have any symptoms, i have none, other than some hair loss, that doc says was from the weight loss and anxiety I experienced,, when I was ill. he called it tellegen effluvium. but I hear lupus also causes hair loss.

Response:

- Hide quoted text — Show quoted text -PETRO wrote: > George Parton wrote: > > My ANA numbers came back at 1:2560. > > Is this typical for others with Lupus?  Higher than most?  Lower than > > most? > > I don’t know anyone else to ask. > > Thanks, > > George > Have you been diagnosed with lupus?

Yes, I have Lupus and some hair loss.  I’ve had the symptoms for about 4 years but was diagnosed in January 1998. George

Response:

In article <37585069.7…@interaccess.com>, PETRO <pet…@interaccess.com> writes [] >people tell me that 1280 is high, so I guess 2560 is high too.

Twice as high!  (Assuming the labs are working to the same standards) >Do you >have any symptoms, i have none, other than some hair loss, that doc says >was from the weight loss and anxiety I experienced,, when I was ill. he >called it tellegen effluvium.

That’s medical Latin for hair loss… > but I hear lupus also causes hair loss.

Yes.  Also I am told that you get left with short stubbly hairs. — Andy For Austria & its philately, Lupus, & much else visit http://www.kitzbuhel.demon.co.uk

Response:

This value is at the high end but it is important to remember that the value of the number does not necessarily correlate with disease activity. You can have a high number and not much disease activity or a low number and be quite ill. Any positive value has to be interpreted in light of other symptoms. George Parton wrote My ANA numbers came back at 1:2560. – Hide quoted text — Show quoted text ->Is this typical for others with Lupus?  Higher than most?  Lower than >most?

Response:

Question:

Hi all, I have just gotten word that I will be made an off for a job in Boca Raton, Florida.  This is really scarey for me.  I want to knwo if anyone else knows of any good docs down there for lupus patients with fibro.  I have been consulting for 5 years now and this will be a real, permanent job.  I need this kind of security for my family, but I also don’t want to get sick on the first day of the job.  So advice would be welcomed. thanks, Cheryl

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Cheryl, I can’t answer your question, but I did want to ask you if you have considered the increased sunshine in Florida.  Living there and vacationing there are two different things, but everytime I go south of the Panhandle my photosensitivity increases.  I live in Georgia so I didn’t think there would be that much difference!  Just something to consider. Julie – Hide quoted text — Show quoted text -CAC wrote: > Hi all, > I have just gotten word that I will be made an off for a job in Boca Raton, > Florida.  This is really scarey for me.  I want to knwo if anyone else knows > of any good docs down there for lupus patients with fibro.  I have been > consulting for 5 years now and this will be a real, permanent job.  I need > this kind of security for my family, but I also don’t want to get sick on > the first day of the job.  So advice would be welcomed. > thanks, > Cheryl

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I have realized that the move to Florida will also include a move into more intense sunlight.  I am already a "vampire" so I don’t think I will have too many problems.  I avoid the sun as if it were the black death. Unfortunately, I have a very active 4 year old and I know it will be hard to keep her in the house, especially when there is no snow to contend with in the winter.  I guess I will have to invest in a sunblock company so I can get free samples! ;-} Cheryl

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Hi Cheryl! I live in the Tampa Bay area and have for several years.  I have just started having photosensitivity problems in the last 6 months. Coincidentally, I also have a four year old who really likes to play outside.  Here’s what I do:  We only go outside before 12 and after 3:30.  I never play out in the sun with him.  I have a hobby area set up in the garage and work on stuff there where I can see and hear him.  I also have a fenced back yard where he can play and be in earshot from the house.  I wear sunglasses outdoors almost all the time. The only other real issue I have right now is the sun on me when I am driving.  I’m going to get a long sleeved shirt to keep in the car for this problem. Unfortunately, this is the worst time of year to move down here.  It will probably feel horribly humid to you.  However, the other 9 months of the year make up for it, IMO. Best of luck, Jan CAC <tekri…@my-dejanews.com> wrote in message

news:Kr2_2.92$qa.603@dustdevil.neo.rr.com… – Hide quoted text — Show quoted text -> I have realized that the move to Florida will also include a move into more > intense sunlight.  I am already a "vampire" so I don’t think I will have too > many problems.  I avoid the sun as if it were the black death. > Unfortunately, I have a very active 4 year old and I know it will be hard to > keep her in the house, especially when there is no snow to contend with in > the winter.  I guess I will have to invest in a sunblock company so I can > get free samples! ;-} > Cheryl

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I’ve been living in the Tampa Bay area for 22 years and, believe me, it is livable.  I seek shade when
outdoors, wear plenty of sunscreen and hats, and still have a nice life in the Sunshine State.  When
driving, I wear sunscreen on my arms, hands and face.  No problems if you are careful and remember
just how strong the sun is.  Don’t forget those sunglasses!!!    -**** Posted from RemarQ, http://www.remarq.com/?a ****-  Search and Read Usenet Discussions in your Browser – FREE –

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Question:

Hi All, I’m so grateful to have found this support group!  This has been a tough couple of years for me.  I first noticed skin rashes on my arms and face shortly after I gave birth to my daughter. It wasn’t until two years later, when I went in to see a dermatologist about my acne, did he notice the lesions on my arms, and did a biopsy which came out to having Discoid Lupus.  I’ve had several other serious tragedy’s in my life. Shortly after my husband and I seperated, he decided to spite me and kidnapped my then 2 year old baby.  For the past year and a half, I’ve endured great stress in looking for her and dealing with various investigators, police, attorneys, so on and so forth.  My dermatologist told me the chances of developing internal Lupus was rare, however, sadly enough, I was just diagnosed with it a couple weeks ago.  I wanted to believe the tiredness, dizzy spells, and achy joints were just from my endless search for my little girl.  Sometimes life just doesn’t seem fair.  I feel like I’ve hit a dead end and have nowhere to go.  But I can’t and won’t give up!  Ive got a precious child out there who needs me!  I’m a fighter, but I don’t know the tools to use in which to fight. If there is anyone out there who can share anyways to cope I’d grately appreciate it! Thank you so much for letting me share. Summer

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About the only thing I can do for you at this point is pray-which I will! I have two young children too and can’t imagine what you’re going through.  God Bless. Cindy

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May I add my prayers as well.  Keep the faith and keep the fight. Bonita

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Can anyone confirm that Juli Furtado underwent a procedure called Autologous Chondrocyte Transplant on her knee? This would have been a year or two ago before her tragic battle with lupus. I cannot find out whether the knee surgery was successful or not. Thanks.

I don’t remember what the procedure was called, but I’m pretty sure she did have reconstructive surgery done and it worked. That’s another reason why she was so disappointed to get Lupus, because finally her knee was much better. JD —

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Can anyone confirm that Juli Furtado underwent a procedure called Autologous Chondrocyte Transplant on her knee? This would have been a year or two ago before her tragic battle with lupus. I cannot find out whether the knee surgery was successful or not. Thanks.

She did have the experimental surgery where they grow cartilage from your own tissue samples and then put it back into your body.

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Can anyone confirm that Juli Furtado underwent a procedure called Autologous Chondrocyte Transplant on her knee? This would have been a year or two ago before her tragic battle with lupus. I cannot find out whether the knee surgery was successful or not. Thanks.

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TribalNation not feeling any good either Oh I hope it doesn’t last for too long.

Me too! I don’t know much about Lupus and I intend to do a web search soon and look it up so as I can better understand what you are going through.

That’s sweet.  It has a longer name…systematic lupus erythematosus.  I have systematic-discoid lupus erythematosus.  It just says that I (we) are affected system-wide involving major organs and discoid is a type of lupus that localizes on the skin so I break out with lesions.  It’s unsightly. It sounds pretty rotten.

It is. Sending healing thoughts your way, Grace

Thanks Grace and all here.  I’m reading lots on asd but with arthritic running amuck I have to limit my typing.  Today, I pushed a lot to complete, what ended up being, a seven page declaration to submit with child custody papers that I have to file.  I’m sore as a result.  I hope ppl don’t think I’m a selfish moron for not engaging more.  I just can’t do more.  Like getting to respond well to one post feels more satisfying to me than doing little spot responses to a lot of posts.  I’m saving the original posts to hopefully respond to later when I’m feeling better.  Thanks again everybody for the support.  Sierra – Hide quoted text — Show quoted text – Hi Sierra/TN – Terribly sorry to hear about your physical struggles. Yah, it s*cks!  I was going to post about it, then decided not to, then I read your post and said "What the hay! Go for it!" and did. Hoping you can find all kinds of ways to pamper yourself and find some kind of mental comfort if nothing else Been sitting in this bitty apartment during the day with shades fully drawn bc when eyesight goes blurry and already sensitive to UVA/UVB rays, even indirect sunshine hurts.  I did go to my daughter’s open house though – sort of dragging myself along.  The cool night with the full moon was kind of refreshing.  Getting out and meeting my daughter’s teachers was nice too! – and hope the flare-up passes on soon. Me too!!! Celery, huh?  Interesting. Threw me too! I read books on lupus and then another comes out with updated info and I just keep learning as are others about what to avoid.  Granted, sometimes we learn a _tad_ too late!  Same thing happened to me with alfalfa sprouts!!!  Where’s a crystal ball to read into the future when you need one eh? I keep asking people if I am the only one whose tongue gets numb when I eat celery. Goes numb?!  Now, that’s a new one on me! TN – don’t feel you should answer this.  I just wanted to say hi, and sorry you are unwell. Thanks, sort of hard not to respond though. Sending my best – Same here.  I hope you’re feeling better soon too!  Sierra

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TribalNation not feeling any good either Oh I hope it doesn’t last for too long. I don’t know much about Lupus and I intend to do a web search soon and look it up so as I can better understand what you are going through. It sounds pretty rotten. Sending healing thoughts your way, Grace – Hide quoted text — Show quoted text – Hi Sierra/TN – Terribly sorry to hear about your physical struggles. Yah, it s*cks!  I was going to post about it, then decided not to, then I read your post and said "What the hay! Go for it!" and did. Hoping you can find all kinds of ways to pamper yourself and find some kind of mental comfort if nothing else Been sitting in this bitty apartment during the day with shades fully drawn bc when eyesight goes blurry and already sensitive to UVA/UVB rays, even indirect sunshine hurts.  I did go to my daughter’s open house though – sort of dragging myself along.  The cool night with the full moon was kind of refreshing.  Getting out and meeting my daughter’s teachers was nice too! – and hope the flare-up passes on soon. Me too!!! Celery, huh?  Interesting. Threw me too! I read books on lupus and then another comes out with updated info and I just keep learning as are others about what to avoid.  Granted, sometimes we learn a _tad_ too late!  Same thing happened to me with alfalfa sprouts!!!  Where’s a crystal ball to read into the future when you need one eh? I keep asking people if I am the only one whose tongue gets numb when I eat celery. Goes numb?!  Now, that’s a new one on me! TN – don’t feel you should answer this.  I just wanted to say hi, and sorry you are unwell. Thanks, sort of hard not to respond though. Sending my best – Same here.  I hope you’re feeling better soon too!  Sierra

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Hi Sierra/TN – Terribly sorry to hear about your physical struggles.

Yah, it s*cks!  I was going to post about it, then decided not to, then I read your post and said "What the hay! Go for it!" and did. Hoping you can find all kinds of ways to pamper yourself and find some kind of mental comfort if nothing else

Been sitting in this bitty apartment during the day with shades fully drawn bc when eyesight goes blurry and already sensitive to UVA/UVB rays, even indirect sunshine hurts.  I did go to my daughter’s open house though – sort of dragging myself along.  The cool night with the full moon was kind of refreshing.  Getting out and meeting my daughter’s teachers was nice too! – and hope the flare-up passes on soon.

Me too!!! Celery, huh?  Interesting.

Threw me too! I read books on lupus and then another comes out with updated info and I just keep learning as are others about what to avoid.  Granted, sometimes we learn a _tad_ too late!  Same thing happened to me with alfalfa sprouts!!!  Where’s a crystal ball to read into the future when you need one eh? I keep asking people if I am the only one whose tongue gets numb when I eat celery.

Goes numb?!  Now, that’s a new one on me! TN – don’t feel you should answer this.  I just wanted to say hi, and sorry you are unwell.

Thanks, sort of hard not to respond though. Sending my best –

Same here.  I hope you’re feeling better soon too!  Sierra

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Hi Sierra/TN – Terribly sorry to hear about your physical struggles.  Hoping you can find all kinds of ways to pamper yourself and find some kind of mental comfort if nothing else – and hope the flare-up passes on soon.  Celery, huh?  Interesting.  I keep asking people if I am the only one whose tongue gets numb when I eat celery.  TN – don’t feel you should answer this.  I just wanted to say hi, and sorry you are unwell. Sending my best – Beauty — For more information about this service, send e-mail to:

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