Question:

Hi Stephanie:))) I know what you mean. I just posted here to Janers. When I pushed send to group it went from hotmail to my Rogers send box , which showed one email. So hmmm , not to be outdone I pressed send again and it said sending 8 messages. Now I see Janers made it to group but where did the other seven go and what were they? Now not only me has bad memory Bruce On. " here and there me thinks:)))

Response:

In article <QpKdnUNfGM7FA13cRVn…@rogers.com>, Bruce <rothnie2…@hotmail.com> wrote >Hi Stephanie:))) >I know what you mean. I just posted here to Janers. When I pushed send to >group it went from hotmail to my Rogers send box , which showed one email. >So hmmm , not to be outdone I pressed send again and it said sending 8 >messages.

When it says "Hit the send key" it does not mean with a 14lb hammer :) — Andy Taylor [Chair, N E Lupus Group] See http://www.northeastlupus.org.uk for more!

Response:

Hmmm , thanks Andy:))) Bruce On. " tis so cold here I fear it was frozen "

Response:

I am on webtv and posted here a time or two and it got send back to my mail box saying undeliverable lol ((((((((((hugs)))))))))) Melody

Response:

Play it again , Melody Bruce On. "I know andy , weak but the best me can do , have frozen:))) "

Response:

I had a appointment with another neuro yesterday, via satellite.  She told me I present symptoms of both ms and cns lupus.  She ordered the test I had been dreading.  She ordered a lumbar puncture. I had a lumbar puncture done 11 yrs ago due to a headache so bad I was incoherent.  It was before anyone knew I had lupus, anyways they did not numb me or anything and they missed the first time so they had to do it again and the second time they did not numb me either.  It hurt so bad I thought I was going to pass out, I was screaming as loud as I could hoping they would pull the needle or what ever it was out of my back, and I swore I would never have it done again.  It traumatized me that much. I told the neuro of my experience, and she said I have to have it done so they can get me the treatment I need. The neuro  is also questioning why my rhummey is not treating my lupus more aggressively.  I was on that plaquenil but because I suffered horrid headaches he took me off it it. Now my rhummey does not want me on any type of chemo because I have no spleen, unless it is life threatening. The other neuro I was seeing I call him the mean one has had me on 3,000 mg of keppra a day, and seeing how no one knows why I even take it, this neuro wants me off of it.  Which is totally fine with me, those pills are huge and taking six of em a day is not fun. My reg doc was in the room with me, so the neuro had my doc do some tests, like pretending I am walking on a straight line, she had me stand up and hold my arms up, I flunked the memory test.  She tested the reflexes on my legs and arms and I had no reflexes on my right side at all then my doc flashed this light into my eyes I am not sure what test she was doing but she told the neuro she would have to dialate my eyes. Neuro told me that ms and cns lupus are very serious and that I will need to get treated right away.  That scared me.  Sometimes I feel like a ticking time bomb. I was so upset when I left I got sick.  After the neuro was done seeing me she told me to leave the room and that she needed to talk with my reg doc in private.  The nurse walked me out of the room so I asked her do I wait in the lobby or go home or what she said she didn’t know so I just went home.  I had alot of questions for my doctor and no one even told me when to get a follow up. And the lumbar puncture I am scared I am going to go to the hospital see the needle and say I am outta here and freak out.  My anxiety level is so high right now, I am scared plumb to death. And if neuro is right and I have the cns lupus and I have to be on chemo, will I be able to go outside, shopping, will I loose all my hair. Will I have to stay in doors all the time so I don’t risk catching a virus or getting sick?  My girls school plays, will I be able to go to them?  These are some of the questions I have and wanted to ask my doctor.  My reg doc is really cool, she is not a rhummey or a neuro just a reg md but to me she plays all three roles my rhummey does not consult with neuro and when he sends reports to my reg doc its a miracle.  I also have this cognitive thing going on witch neuro suspects is from a cns lupus involvement.  If anyone can please help or offer support please, let me know.  Neuro also said I have to have neuro tests preformed and I need to see a therapist.  Thanks in advance (((((((((hugs)))))) Melody

Response:

Oh Melody! I haven’t posted in awhile, but I was so upset by your post I had to write to tell you that you are in my prayers. I can only imagine how this is all very frightening and overwhelming. I have not had experience with anything you are talking about except that I have had MANY spinal taps due to another condition I have. I know how terrifying they can be. My first one was pretty horrendous as well — an internist was doing it and nicked the nerves and it was quite painful. However — to give you some hope — since then I have had a number of needles in the back/spinals and NONE were like the first. From then on I insisted on an anesthesiologist (sp?) or my pain doc (who is an anesthesiologist as well) to do my spinal taps. They numb with lidocaine, which feels like a small bee sting in the back (not nice but bearable) and then the needle going in feels like a dull to moderate ache. That is all you should feel if a good anesthesiologist is doing it. I know each of us senses pain differently — but I swear the lead up is worse than the actual event. You may want to ask if you can have someone you trust with you to hold your hand and distract you through the procedure. Many times only a nurse is allowed to be there — but I would express your fears to her and ask her to be the support — someones hand to squeeze and someone to talk you through it. And lastly, I have found that deep breathing helps — I take a deep breath right before the first needle goes in — and I breath out hard through my mouth with pursed lips during the initial sting of pain (kinda like labor breathing!). Then I do slow controlled breaths (in through nose, out through pursed lips) during the rest when there is the aching. This helps relax your muscles and takes down on the pain. And lastly, one time I had way too many needles stuck in my back and I broke down and cried to my doc and he ordered Adivan to relax me before the procedure. This may be an option for you. I am so sorry that you must endure all of this. Please keep us updated on how you are doing. Let me know if there is anything else I can tell you about surviving spinal taps. Let us know when it is scheduled so we can all be sending prayers your way on that day. Stephanie "Lassy Lass" <MelodyMans…@webtv.net> wrote in message

news:23442-41BF5224-15@storefull-3218.bay.webtv.net… – Hide quoted text — Show quoted text ->I had a appointment with another neuro yesterday, via satellite.  She > told me I present symptoms of both ms and cns lupus.  She ordered the > test I had been dreading.  She ordered a lumbar puncture. > I had a lumbar puncture done 11 yrs ago due to a headache so bad I was > incoherent.  It was before anyone knew I had lupus, anyways they did not > numb me or anything and they missed the first time so they had to do it > again and the second time they did not numb me either.  It hurt so bad I > thought I was going to pass out, I was screaming as loud as I could > hoping they would pull the needle or what ever it was out of my back, > and I swore I would never have it done again.  It traumatized me that > much. > I told the neuro of my experience, and she said I have to have it done > so they can get me the treatment I need. > The neuro  is also questioning why my rhummey is not treating my lupus > more aggressively.  I was on that plaquenil but because I suffered > horrid headaches he took me off it it. > Now my rhummey does not want me on any type of chemo because I have no > spleen, unless it is life threatening. > The other neuro I was seeing I call him the mean one has had me on 3,000 > mg of keppra a day, and seeing how no one knows why I even take it, this > neuro wants me off of it.  Which is totally fine with me, those pills > are huge and taking six of em a day is not fun. > My reg doc was in the room with me, so the neuro had my doc do some > tests, like pretending I am walking on a straight line, she had me stand > up and hold my arms up, I flunked the memory test.  She tested the > reflexes on my legs and arms and I had no reflexes on my right side at > all then my doc flashed this light into my eyes I am not sure what test > she was doing but she told the neuro she would have to dialate my eyes. > Neuro told me that ms and cns lupus are very serious and that I will > need to get treated right away.  That scared me.  Sometimes I feel like > a ticking time bomb. I was so upset when I left I got sick.  After the > neuro was done seeing me she told me to leave the room and that she > needed to talk with my reg doc in private.  The nurse walked me out of > the room so I asked her do I wait in the lobby or go home or what she > said she didn’t know so I just went home.  I had alot of questions for > my doctor and no one even told me when to get a follow up. > And the lumbar puncture I am scared I am going to go to the hospital see > the needle and say I am outta here and freak out.  My anxiety level is > so high right now, I am scared plumb to death. > And if neuro is right and I have the cns lupus and I have to be on > chemo, will I be able to go outside, shopping, will I loose all my hair. > Will I have to stay in doors all the time so I don’t risk catching a > virus or getting sick?  My girls school plays, will I be able to go to > them?  These are some of the questions I have and wanted to ask my > doctor.  My reg doc is really cool, she is not a rhummey or a neuro just > a reg md but to me she plays all three roles my rhummey does not consult > with neuro and when he sends reports to my reg doc its a miracle.  I > also have this cognitive thing going on witch neuro suspects is from a > cns lupus involvement.  If anyone can please help or offer support > please, let me know.  Neuro also said I have to have neuro tests > preformed and I need to see a therapist.  Thanks in advance > (((((((((hugs)))))) Melody

Response:

Hmmm — sorry about the three posts. Have NO idea how that happened. "Stephanie Townsend" <ler…@hotmail.com> wrote in message

news:EqydnR0B25G0HSLcRVn-jg@comcast.com… – Hide quoted text — Show quoted text -> Oh Melody! > I haven’t posted in awhile, but I was so upset by your post I had to write > to tell you that you are in my prayers. I can only imagine how this is all > very frightening and overwhelming. I have not had experience with anything > you are talking about except that I have had MANY spinal taps due to > another > condition I have. I know how terrifying they can be. My first one was > pretty > horrendous as well — an internist was doing it and nicked the nerves and > it > was quite painful. However — to give you some hope — since then I have > had > a number of needles in the back/spinals and NONE were like the first. From > then on I insisted on an anesthesiologist (sp?) or my pain doc (who is an > anesthesiologist as well) to do my spinal taps. They numb with lidocaine, > which feels like a small bee sting in the back (not nice but bearable) and > then the needle going in feels like a dull to moderate ache. That is all > you > should feel if a good anesthesiologist is doing it. I know each of us > senses > pain differently — but I swear the lead up is worse than the actual > event. > You may want to ask if you can have someone you trust with you to hold > your > hand and distract you through the procedure. Many times only a nurse is > allowed to be there — but I would express your fears to her and ask her > to > be the support — someones hand to squeeze and someone to talk you through > it. And lastly, I have found that deep breathing helps — I take a deep > breath right before the first needle goes in — and I breath out hard > through my mouth with pursed lips during the initial sting of pain (kinda > like labor breathing!). Then I do slow controlled breaths (in through > nose, > out through pursed lips) during the rest when there is the aching. This > helps relax your muscles and takes down on the pain. And lastly, one time > I > had way too many needles stuck in my back and I broke down and cried to my > doc and he ordered Adivan to relax me before the procedure. This may be an > option for you. > I am so sorry that you must endure all of this. Please keep us updated on > how you are doing. Let me know if there is anything else I can tell you > about surviving spinal taps. Let us know when it is scheduled so we can > all > be sending prayers your way on that day. > Stephanie > "Lassy Lass" <MelodyMans…@webtv.net> wrote in message > news:23442-41BF5224-15@storefull-3218.bay.webtv.net… >>I had a appointment with another neuro yesterday, via satellite.  She >> told me I present symptoms of both ms and cns lupus.  She ordered the >> test I had been dreading.  She ordered a lumbar puncture. >> I had a lumbar puncture done 11 yrs ago due to a headache so bad I was >> incoherent.  It was before anyone knew I had lupus, anyways they did not >> numb me or anything and they missed the first time so they had to do it >> again and the second time they did not numb me either.  It hurt so bad I >> thought I was going to pass out, I was screaming as loud as I could >> hoping they would pull the needle or what ever it was out of my back, >> and I swore I would never have it done again.  It traumatized me that >> much. >> I told the neuro of my experience, and she said I have to have it done >> so they can get me the treatment I need. >> The neuro  is also questioning why my rhummey is not treating my lupus >> more aggressively.  I was on that plaquenil but because I suffered >> horrid headaches he took me off it it. >> Now my rhummey does not want me on any type of chemo because I have no >> spleen, unless it is life threatening. >> The other neuro I was seeing I call him the mean one has had me on 3,000 >> mg of keppra a day, and seeing how no one knows why I even take it, this >> neuro wants me off of it.  Which is totally fine with me, those pills >> are huge and taking six of em a day is not fun. >> My reg doc was in the room with me, so the neuro had my doc do some >> tests, like pretending I am walking on a straight line, she had me stand >> up and hold my arms up, I flunked the memory test.  She tested the >> reflexes on my legs and arms and I had no reflexes on my right side at >> all then my doc flashed this light into my eyes I am not sure what test >> she was doing but she told the neuro she would have to dialate my eyes. >> Neuro told me that ms and cns lupus are very serious and that I will >> need to get treated right away.  That scared me.  Sometimes I feel like >> a ticking time bomb. I was so upset when I left I got sick.  After the >> neuro was done seeing me she told me to leave the room and that she >> needed to talk with my reg doc in private.  The nurse walked me out of >> the room so I asked her do I wait in the lobby or go home or what she >> said she didn’t know so I just went home.  I had alot of questions for >> my doctor and no one even told me when to get a follow up. >> And the lumbar puncture I am scared I am going to go to the hospital see >> the needle and say I am outta here and freak out.  My anxiety level is >> so high right now, I am scared plumb to death. >> And if neuro is right and I have the cns lupus and I have to be on >> chemo, will I be able to go outside, shopping, will I loose all my hair. >> Will I have to stay in doors all the time so I don’t risk catching a >> virus or getting sick?  My girls school plays, will I be able to go to >> them?  These are some of the questions I have and wanted to ask my >> doctor.  My reg doc is really cool, she is not a rhummey or a neuro just >> a reg md but to me she plays all three roles my rhummey does not consult >> with neuro and when he sends reports to my reg doc its a miracle.  I >> also have this cognitive thing going on witch neuro suspects is from a >> cns lupus involvement.  If anyone can please help or offer support >> please, let me know.  Neuro also said I have to have neuro tests >> preformed and I need to see a therapist.  Thanks in advance >> (((((((((hugs)))))) Melody

Response:

Question:

In article <29v9lv4bau1adma19eo70rp9asoo9qv…@4ax.com>, kcat <kca…@newsguy.com> wrote [ >probably due to an allergy to one of the other metals.  "gold" is not >just gold but contains other metals that are more reactive.  Now, I'm >not a metallurgist so don't ask me to say *what* is in it that could >be causing a problem.

I think the usual alloyers are silver and copper. [ >I'll do some digging - I *believe* nickel is one of the least reactive >metals but won't swear to it.

Don't - it has been implicated in "Euro-rash", [1] where people say the new European currency causes rashes. Mind you, they may be political rashes… [1] NOT Euro-trash – that is Something Else. — Andy [Chair, N E Lupus Group] See http://www.kitzbuhel.demon.co.uk/lupus for more!

Response:

On Tue, 02 Sep 2003 19:54:02 GMT, "Sherry" <hurst…@NoSpam.invalid> wrote: >Kat, >I can’t wear most of my jewelry good expensive stuff or anything else.  I do >break out from even the gold be it a ring, necklace, or earrings.  with the >earrings my ear lobe will start to do its thing before I even have the 2nd >earring in. >I know that I’m weird…my skin is super sensitive to lots of things….but >why my jewelry? Who knows.

probably due to an allergy to one of the other metals.  "gold" is not just gold but contains other metals that are more reactive.  Now, I’m not a metallurgist so don’t ask me to say *what* is in it that could be causing a problem.  My sister has a similar problem (she also has SLE) but reacts largely to cheap silver I think.  She also turns all of her nice silver solid black after a short time.  Something (acids?) in her skin cause tarnishing quickly.  I believe copper would pose a similar problem for her. Most of us have heard of the expression "hypoallergenic posts" when dealing with earrings.  I think there’s less protective skin in pierced ears making them more susceptible to allergic reactions to metals. But hypoallergenic just means a reduced allergic response or less likelihood of an allergic response.  I wear earrings only on occasion because no matter what I do to protect myself (cortisone cream and antibiotic ointment) they get sore after a couple of hours. End result – your response is probably not directly related to autoimmune disease but to allergy.  However, having an autoimmune disease tends to exacerbate our allergies.   IMO – I would try a gold ring (not you of course but the OP’s fiance) and feel that after a few days if there is no reaction around the finger than a wedding band should be no big deal.   I’ll do some digging – I *believe* nickel is one of the least reactive metals but won’t swear to it.

Response:

I take it this way, as far as what lupus people must avoid:  whatever agent that they find flares them.  I consider lupies to generally have "multiple chemical sensitivity," in that almost invariably there is going to be a chemical agent that causes you a flare.  I used to have to wash my clothes at a laundromat.  One day I was exposed to something at the laundromat, and I came home and fell on the couch, could not move for four days… after that I had an exacerbation of my illness that lasted three years! I think everybody has to make their own list.  Mine includes laundry soap, chlorine bleach, "simple green,"  WD-40, "Polo" cologne, concord grapes, red wine,Top Ramen, and hot dogs (except hebrew national).  Sun, car exhaust, dieting, and emotional stress are flare factors as well. Hope this Helps Mair "NW" <ninb…@MJAUyahoo.se> wrote in message

news:p_15b.26593$dP1.68664@newsc.telia.net… – Hide quoted text — Show quoted text -> "Blewyn" <ble…@btinternet.com> skrev i meddelandet > news:bj04db$6cg$1@titan.btinternet.com… > > Thanks for the advice posted in response to my earlier question ! I read > the > > links provided, and now have another question : > > Gold.  Is this a trade name for a drug that sufferers must avoid, or is > gold > > itself a danger to Discoid Lupus sufferers ? My girlfriend and I have > just > > bought a pair of wedding rings….. > Don’t know much about what lupus people should avoid, since I have other > kinds of arthritis. However, I do know that gold sodium injections and some > other pill called Ridaura were pretty popular treatments for rheumatoid > arthritis before the newer treatments. Don’t know how much they still are > being used. Anyway, both Ridaura and the Myochrisine can affect the kidneys > among other things. > Looking at rxlist.com, Myochrisine is contraindicated in systemic lupus. > Doesn’t stand why, though. > http://www.rxlist.com/cgi/generic2/myochrysine_od.htm > Nina

Response:

On Tue, 2 Sep 2003 20:08:29 +0000 (UTC), "Blewyn" <ble…@btinternet.com> wrote: >Thanks to all for the advice, it’s REALLY appreciated ! On the subject of >chemicals and skin, I have a somewhat radical suggestion…….just shower >with water, nothing else.  

yeah – sadly not enough.  got long hair that would never get clean that way.  I do have a very "clean" oatmeal soap (it’s oatmeal, honey, vegetable and a touch of shea butter) that has made a *huge* difference in my reaction to shampoos and such.  Medication and poor absorption of nutrients has made my hair (one of the few things I get vain about) coarse and losing pigment.  So i’ve been trying to find a decent conditioner that won’t hurt my skin or at least hurt it less. Live in a very humid climate. OTOH – I understand that when we strip the oils from the hair and skin the skin reacts to replace them – kind of end up in an endless do loop eh? >apply soap if I’ve got oil, grease or grime on me, which is uncommon seeing >as I’m a penpusher.  

 :-)  I’m a fountain pen pusher.  constantly got ink stains on my hands.  constantly trying to get ink stains off of my hands.   >someone with your kind of problem – may well give your skin the protective >coating it needs.

Thanks for the input. There’s a part of me that is logical and understands the skin response to detergents. there’s another part of me that says AACK!  :)

Response:

Blewyn wrote:

<snip> – Hide quoted text — Show quoted text -> Thanks to all for the advice, it’s REALLY appreciated ! On the subject of > chemicals and skin, I have a somewhat radical suggestion…….just shower > with water, nothing else.  I have been doing this for about 4 weeks now > (paying VERY close attention to my odour..) on the advice of my hairdresser, > and my skin looks better than it has for ages – NO spots ! My hair looks > great – but does start to look greasy if it isn’t showered at least once per > day (my climate 15-25

Question:

Hi everyone. I went out by the beach while Mair was restin today because I wanted to thank the ranger man for givin us a new scarf, the one that has the map of the San Anderaeus fault on it.  I told the ranger man that Mair is havin headaches, and that the Phisikcal therapy man had been pullin on Mair’s neck to try to fix it, but that Mair’s neck was soarer, and she be’s havin to keep lyin down. The ranger man said I should take the scarf he gave me, and tie it [loosely, he said] around Mair’s head.  He said I should then grow a pair of wings and fly over top of Mair’s head so that her head would stay up.  I asked him where he thought I could get a pair of pig-wings.  He said "Well, you know what they say about when pigs have wings…." I did *not* know, but I did not want to say so.  I’m dumb enough as it is. Pigmet — stin…@earthlink.net http://radio.weblogs.com/0114986/

Response:

- Hide quoted text — Show quoted text -Pigmet wrote: > Hi everyone. > I went out by the beach while Mair was restin today because I wanted to > thank the ranger man for givin us a new scarf, the one that has the map of > the San Anderaeus fault on it.  I told the ranger man that Mair is havin > headaches, and that the Phisikcal therapy man had been pullin on Mair’s neck > to try to fix it, but that Mair’s neck was soarer, and she be’s havin to > keep lyin down. > The ranger man said I should take the scarf he gave me, and tie it [loosely, > he said] around Mair’s head.  He said I should then grow a pair of wings and > fly over top of Mair’s head so that her head would stay up.  I asked him > where he thought I could get a pair of pig-wings.  He said "Well, you know > what they say about when pigs have wings…." I did *not* know, but I did > not want to say so.  I’m dumb enough as it is. > Pigmet

<snip> Sweet Pigmet, there is no way you are ‘dumb’ by any means!  You are a sweet innocent pigmet, and for that you will find your wings in no time!   Only angels like yourself get the privelege to fly around on silver wings.  Mair is lucky to have you. Hugs, -Sharon — "Don’t make me come down there…"                            -God

Response:

Hi Sharon, Thanks for replyin to my post.  The ranger man was just jokin,  I knew that. I don’t want wings, but you are sweet to say I will find them.  I guess in a way I will find them, as Mair and each of my other friends finds their emotional freedom in the face of havin lupus. Love to you all Pigmet People say "As long as you have your health, that’s the main thing."  But that’s not it–that’s not it at all.  The main thing is just being together. "Sharon" <noway…@hotmail.com> wrote in message

news:bfu6rk$ivgc1$2@ID-163463.news.uni-berlin.de… – Hide quoted text — Show quoted text -> Pigmet wrote: > > Hi everyone. > > I went out by the beach while Mair was restin today because I wanted to > > thank the ranger man for givin us a new scarf, the one that has the map of > > the San Anderaeus fault on it.  I told the ranger man that Mair is havin > > headaches, and that the Phisikcal therapy man had been pullin on Mair’s neck > > to try to fix it, but that Mair’s neck was soarer, and she be’s havin to > > keep lyin down. > > The ranger man said I should take the scarf he gave me, and tie it [loosely, > > he said] around Mair’s head.  He said I should then grow a pair of wings and > > fly over top of Mair’s head so that her head would stay up.  I asked him > > where he thought I could get a pair of pig-wings.  He said "Well, you know > > what they say about when pigs have wings…." I did *not* know, but I did > > not want to say so.  I’m dumb enough as it is. > > Pigmet > <snip> > Sweet Pigmet, there is no way you are ‘dumb’ by any means!  You are a > sweet innocent pigmet, and for that you will find your wings in no time! >   Only angels like yourself get the privelege to fly around on silver > wings.  Mair is lucky to have you. > Hugs, > -Sharon > — > "Don’t make me come down there…" >                            -God

Response:

Pigmet, You are such a thoughtful friend. Mair is so lucky to have you. I know you feel the same for her…. She feels better just knowing you are there to hold her hand when she feels so awfully bad….Just keep on making sure she takes her medicine, and make her lie down when she needs too. Cindy "Pigmet" <stin…@earthlink.net> wrote in message

news:rhkUa.21981$Mc.1678101@newsread1.prod.itd.earthlink.net… – Hide quoted text — Show quoted text -> Hi everyone. > I went out by the beach while Mair was restin today because I wanted to > thank the ranger man for givin us a new scarf, the one that has the map of > the San Anderaeus fault on it.  I told the ranger man that Mair is havin > headaches, and that the Phisikcal therapy man had been pullin on Mair’s neck > to try to fix it, but that Mair’s neck was soarer, and she be’s havin to > keep lyin down. > The ranger man said I should take the scarf he gave me, and tie it [loosely, > he said] around Mair’s head.  He said I should then grow a pair of wings and > fly over top of Mair’s head so that her head would stay up.  I asked him > where he thought I could get a pair of pig-wings.  He said "Well, you know > what they say about when pigs have wings…." I did *not* know, but I did > not want to say so.  I’m dumb enough as it is. > Pigmet > — > stin…@earthlink.net > http://radio.weblogs.com/0114986/

Response:

Question:

I hope you have a great and safe time…  I look forward to hearing all about it when you return! -Kristin "BJ" <B…@sk.nojunk.ca> wrote in message

news:v8m83ec0gsti57@corp.supernews.com… – Hide quoted text — Show quoted text -> Hi Everyone, > I am leaving tomorrow for a mini family reunion in Toronto. I will be seeing > my mother for the first time in 5 years. I am armed with masks and hand > cleanser, and will be coming home on Monday. Keep your fingers crossed for > me. I am worried that the nursing home, where my mom resides, may be closed > because of SARS. At the moment they are allowing limited visits, and guests > must wear masks. I may have to sneak in there, but I will not come home > without having seen her. > BJ-Sk. Canada

Response:

Enjoy and be careful while you are gone. I’d wear that mask every place!! (((HUGS))) Bev "BJ" <B…@sk.nojunk.ca> wrote in message

news:v8m83ec0gsti57@corp.supernews.com… – Hide quoted text — Show quoted text -> Hi Everyone, > I am leaving tomorrow for a mini family reunion in Toronto. I will be seeing > my mother for the first time in 5 years. I am armed with masks and hand > cleanser, and will be coming home on Monday. Keep your fingers crossed for > me. I am worried that the nursing home, where my mom resides, may be closed > because of SARS. At the moment they are allowing limited visits, and guests > must wear masks. I may have to sneak in there, but I will not come home > without having seen her. > BJ-Sk. Canada

Response:

BJ wrote: > Hi Everyone, > I am leaving tomorrow for a mini family reunion in Toronto. I will be seeing > my mother for the first time in 5 years. I am armed with masks and hand > cleanser, and will be coming home on Monday. Keep your fingers crossed for > me. I am worried that the nursing home, where my mom resides, may be closed > because of SARS. At the moment they are allowing limited visits, and guests > must wear masks. I may have to sneak in there, but I will not come home > without having seen her. > BJ-Sk. Canada

Enjoy BJ!!  DO be careful with that danged SARS!! -Sharon — Visit my webpage: http://www.qc.edu/~sperlof1/ ~Peace~ We must come to see that peace is not merely a distant goal we seek, but it is a means by which we arrive at that goal… We must pursue peaceful ends through peaceful means.                               -Martin Luther King Jr.

Response:

Hi Bruce and BJ, Please let us know Bruce, I called Ontario Telehealth Gen: 1-866-797-0000 SARS 1-866-797-0007 The nurse at the General Number said: To her/their knowledge nobody’s temp is being taken at airports unless they are considered high-risk. BJ will be asked the following: 1) have you been in close contact with someone DIAGNOSED with SARS 2) have you been out of the country recently 3) have you been anywhere near/in 2 hospitals (Grace XXXX and I forget the other) both in Toronto She also recommended telling them or showing them that she has Lupus. She said "it is known that other illnesses carry fevers, so just a fever would not cause BJ a problem with airport, nor should she be asked as far as she knew, to have her temp taken, only the questions above". She also said if you know anything other than what she/they know, to call the Ministry of Health (or the numbers above). The nursing home where her mother is may have more questions. Saying she has Lupus, should suffice. The only place I saw on news is hospitals taking temperature. So do let us know, Posted and e-mailed to BJ Go girl !  Enjoy your trip and I’ll miss ya. Hugs J – Hide quoted text — Show quoted text -bruce wrote: > J If BJ does have a temp close to 38 , they may refuse her on plane. Will > check to see. > BJ a DR> letter as to your own condition would cover thy butt as many in > Toronto are on edge. > I am not allowed to visit any of the paramedic stations . Have been told > seeing my cert. is good to 2004 . That I may be called in as a director for > an area if more paramedics go down. > Bruce On.

Response:

BJ, I sure wish you a safe trip!  How fantastic to get to go see your mom and other family members!!!!  Have fun!!!!  See you when you get back. Hugs, Sherry "BJ" <B…@sk.nojunk.ca> wrote in message

news:v8m83ec0gsti57@corp.supernews.com… – Hide quoted text — Show quoted text -> Hi Everyone, > I am leaving tomorrow for a mini family reunion in Toronto. I will be seeing > my mother for the first time in 5 years. I am armed with masks and hand > cleanser, and will be coming home on Monday. Keep your fingers crossed for > me. I am worried that the nursing home, where my mom resides, may be closed > because of SARS. At the moment they are allowing limited visits, and guests > must wear masks. I may have to sneak in there, but I will not come home > without having seen her. > BJ-Sk. Canada

Response:

J If BJ does have a temp close to 38 , they may refuse her on plane. Will check to see. BJ a DR> letter as to your own condition would cover thy butt as many in Toronto are on edge. I am not allowed to visit any of the paramedic stations . Have been told seeing my cert. is good to 2004 . That I may be called in as a director for an area if more paramedics go down. Bruce On. "J" <Philom…@example.com> wrote in message

news:3E8B3808.7BCD58A5@execulink.com… – Hide quoted text — Show quoted text -> What testing Bruce?  For temperature? Lupies have fevers, will BJ be turned away > because of fever? > or does she need letter from doctor? > Hugs > J > bruce wrote:At Toronto airport you may be tested coming and leaving, pick up > PINK imfo > > sheets at airport will help to explain. > > I would say for you and yours to always wear ,

Response:

Ok, thanks Bruce, according to Andy’s handy chart that’s 100.4 F As a person in the biz, is there a way to quickly lower one’s temp, just before getting to the test? ice cubes in the mouth? or are they using the type of thermometers that measure ear temp? Cold cloth on ears? It would be a shame after so  much wait and prep for BJ to get turned away at airport or heaven forbid, not be allowed to come back home. I have no info that she will have access to computer where she’s going, nor the time or ability to set it up to e-mail you (FYI). J – Hide quoted text — Show quoted text -bruce wrote: > If BJ does have a temp close to 38 , they may refuse her on plane. Will > check to see. > BJ a DR> letter as to your own condition would cover thy butt as many in > Toronto are on edge. > I am not allowed to visit any of the paramedic stations . Have been told > seeing my cert. is good to 2004 . That I may be called in as a director for > an area if more paramedics go down.

Response:

What testing Bruce?  For temperature? Lupies have fevers, will BJ be turned away because of fever? or does she need letter from doctor? Hugs J bruce wrote:At Toronto airport you may be tested coming and leaving, pick up

PINK imfo – Hide quoted text — Show quoted text -> sheets at airport will help to explain. > I would say for you and yours to always wear ,

Response:

Hi BJ If you need anything or an update for N/h I can call for you. Rothnie2…@hotmail.com home Ph 705 327-7543 cell 3318065   second cell 3317434  Ask to speak to the administrator of n/h as soon as possible to jump the chain of command , she will with your story help you see your mom. Now as for you , cider hand rise medical use. If you can not get it then the best bacterial spray or liquid. wash hands every time you touch door handle , ect. do not use same Kleenex again , discard not in purse or pocket. If you can wear latex or rubber surgical gloves this is best, wear all the time changing every hour use to air hands. Buy by box local pharmacy. Start the precautions at your end as any plane is not safe at this time. At Toronto airport you may be tested coming and leaving, pick up PINK imfo sheets at airport will help to explain. I would say for you and yours to always wear ,  N 95 mask , changing every 5 hours. with your health. All this may sound overdoing it , IT IS NOT. Bruce On. " just concerned for prarrie chick " "BJ" <B…@sk.nojunk.ca> wrote in message

news:v8m83ec0gsti57@corp.supernews.com… – Hide quoted text — Show quoted text -> Hi Everyone, > I am leaving tomorrow for a mini family reunion in Toronto. I will be seeing > my mother for the first time in 5 years. I am armed with masks and hand > cleanser, and will be coming home on Monday. Keep your fingers crossed for > me. I am worried that the nursing home, where my mom resides, may be closed > because of SARS. At the moment they are allowing limited visits, and guests > must wear masks. I may have to sneak in there, but I will not come home > without having seen her. > BJ-Sk. Canada

Response:

Hi Everyone, I am leaving tomorrow for a mini family reunion in Toronto. I will be seeing my mother for the first time in 5 years. I am armed with masks and hand cleanser, and will be coming home on Monday. Keep your fingers crossed for me. I am worried that the nursing home, where my mom resides, may be closed because of SARS. At the moment they are allowing limited visits, and guests must wear masks. I may have to sneak in there, but I will not come home without having seen her. BJ-Sk. Canada

Response:

Question:

In article <9n5vgucmdtjtf1u3307unedek0jr7ea…@4ax.com>, KC <kcdoc…@ghg.net> wrote [ >on third attempt to get them cooked all the way through - burned 'em. >forgot to add water. >now the house is filled with smoke and the smell of burned potatoes.

(recovers self enough to type)  Our Speciality de la Maison is dry- roasted eggs - they are meant to be hardboiled eggs but after 30 minutes or so the water has all gone... -- Andy [Editor, Austrian Philatelic Society] For Austrian philately <URL:http://www.kitzbuhel.demon.co.uk/austamps> For Lupus <URL:http://www.kitzbuhel.demon.co.uk/lupus> For my other interests <URL:http://www.kitzbuhel.demon.co.uk>

Response:

I’ll trade your burnt potato smell for the scent of dirty litter boxes……….. guess what I have to do today? My tummy likes cream of wheat  when it gets all wonky – which is all too often Feel better! Leslie — Discombobulated Thoughts of an Adelpated Mind "KC" <kcdoc…@ghg.net> wrote in message

news:9n5vgucmdtjtf1u3307unedek0jr7ea59g@4ax.com… – Hide quoted text — Show quoted text -> Bleah.. > I’m having gut problems again. > hubby said "cook the rest of the potatoes just like you did this > weekend. you know you can eat that." > so i did. > But the problem was – the "rest" of the potatoes were left behind > because they were too big (supposed to be "new potatoes" barely > smaller than a russet). > I tried anyway. Using pressure coooker – how I always fix them. > didn’t cut them in half like I should have. > on third attempt to get them cooked all the way through – burned ‘em. > forgot to add water. > now the house is filled with smoke and the smell of burned potatoes. > <grumble grumble> > KCat the hungry – no slurping on second Ensure of the day…

Response:

On Wed, 19 Jun 2002 10:25:16 +0100, Andy <a…@kitzbuhel.demon.co.uk> wrote: >(recovers self enough to type)  Our Speciality de la Maison is dry- >roasted eggs – they are meant to be hardboiled eggs but after 30 minutes >or so the water has all gone…

LOL!  sigh.. maybe today I’ll eat… dunno… so far not much hope

Response:

Now, now, we’ll have none of that!  How can you expect to gain half the weight I’m shedding if you don’t eat? Sheesh! "KC" <kcdoc…@ghg.net> wrote in message

news:9n5vgucmdtjtf1u3307unedek0jr7ea59g@4ax.com… – Hide quoted text — Show quoted text -> Bleah.. > I’m having gut problems again. > hubby said "cook the rest of the potatoes just like you did this > weekend. you know you can eat that." > so i did. > But the problem was – the "rest" of the potatoes were left behind > because they were too big (supposed to be "new potatoes" barely > smaller than a russet). > I tried anyway. Using pressure coooker – how I always fix them. > didn’t cut them in half like I should have. > on third attempt to get them cooked all the way through – burned ‘em. > forgot to add water. > now the house is filled with smoke and the smell of burned potatoes. > <grumble grumble> > KCat the hungry – no slurping on second Ensure of the day…

Response:

Bleah.. I’m having gut problems again. hubby said "cook the rest of the potatoes just like you did this weekend. you know you can eat that." so i did.   But the problem was – the "rest" of the potatoes were left behind because they were too big (supposed to be "new potatoes" barely smaller than a russet). I tried anyway. Using pressure coooker – how I always fix them. didn’t cut them in half like I should have. on third attempt to get them cooked all the way through – burned ‘em. forgot to add water. now the house is filled with smoke and the smell of burned potatoes. <grumble grumble> KCat the hungry – no slurping on second Ensure of the day…

Response:

Question:

This ranger dude has some charming friends.

And they are? You really think "Sandn****KILLER" is just a cute nickname? Not, say, "hate speech"? Think hard, it might be a trick question.

Good. Good. Now dip and…..good…..good….now spin and start to salsa dance…..good……good. Since this started with a forgery to give grief to rmb and the cancer and lupus support groups, you started with a few strikes against you. If you want to make your point, you’ll have to do better than your Beavis and Butthead act.

I’m from the lupus group simple simon. Haven’t we been hearing your simple-minded and mean-spirited spewing for a week or so under other names? I think some of my buddies call you "rumpranger".

Thats because they have a secret desire to relive those nocturnal visits from their papa. Just wishful thinking. How about the hate you spew? Who is hennessey? Ith that your hairdrether? Thilly boy.

Response:

Hey "Lawrence", If I had a friend who called himself "Sandn****KILLER", I’d shut up about it. I’d like to see some "Evidence" of "spewing hate" on my part. Aren’t you clever for knowing so many big words about dancing. And a hairdresser who lisps. Oh my! How original! Your stuff has been forwarded to some people who might not see it that way.

Response:

Why doesn’t someone just delete this obviously sick and rude post???  Just wondering.

Because Usenet doesn’t work that way. Ted — Family Websites:  http:/seeberfamily.org A usefull method for ending terrorism:  http://www.skirsch.com/politics/plane/ultimate.htm  Layman’s view: http://www.zdnet.com/anchordesk/stories/story/0,10738,2816429,00.html

Response:

This ranger dude has some charming friends. You really think "Sandn****KILLER" is just a cute nickname? Not, say, "hate speech"? Think hard, it might be a trick question. Since this started with a forgery to give grief to rmb and the cancer and lupus support groups, you started with a few strikes against you. If you want to make your point, you’ll have to do better than your Beavis and Butthead act. Haven’t we been hearing your simple-minded and mean-spirited spewing for a week or so under other names? I think some of my buddies call you "rumpranger". Apparently you’re unfamiliar with the concept of hate speech.

So sure of that are you? This isn’t a dance.

Yes it is. You are dancing right now. What you’re doing is goose-stepping.

No I’m squid stepping. Big difference Adolph. Now behave.

Response:

<giggle  ;)  Good one.  HUGS~ crazyred

– Hide quoted text — Show quoted text – "Sandn****killer"? With a name like that, I bet you’re a deep thinker.

Response:

Apparently you’re unfamiliar with the concept of hate speech. This isn’t a dance. What you’re doing is goose-stepping. Hey, bigot, Since 9/11, names like "sandn****killer" are esp. unfunny. I bet his ISP thinks so too.

It’s called freedom of speech oh ignorant one. Remember that? If whomever this person is chooses to use that expression as their posting name, then that’s the way it goes. BTW nice dance Ginger.

Response:

Apparently you’re unfamiliar with the concept of hate speech.

So sure of that are you? This isn’t a dance.

Yes it is. You are dancing right now. What you’re doing is goose-stepping.

No I’m squid stepping. Big difference Adolph. Now behave.

Response:

Hey, bigot, Since 9/11, names like "sandn****killer" are esp. unfunny. I bet his ISP thinks so too. Hot tip: If I point out that "Sandn******killer" is a name that has to belong to someone ignorant, it doesn’t make me look stupid.

Why does it have to belong to someone stupid, stupid? And yes it makes you look stupid because you are dancing. Not very well but still you are. We’ll work on your moves together. Soon you’ll dance like Ginger Rogers instead of Dale Evans. Your reply does, however, make you look like you’re on the same intellectual level as your friend the "Sandn*****killer".

Sssssssssshhhh…….listen…….hear that? That silence? Thats me not caring what you think. – Hide quoted text — Show quoted text -"Sandn****killer"? With a name like that, I bet you’re a deep thinker. Even the slightest hint of a thought would starve in your pea brain.

Response:

"Sandn****killer"? With a name like that, I bet you’re a deep thinker.

Response:

Hot tip: If I point out that "Sandn******killer" is a name that has to belong to someone ignorant, it doesn’t make me look stupid. Your reply does, however, make you look like you’re on the same intellectual level as your friend the "Sandn*****killer". "Sandn****killer"? With a name like that, I bet you’re a deep thinker.

Even the slightest hint of a thought would starve in your pea brain.

Response:

Hot tip: If I point out that "Sandn******killer" is a name that has to belong to someone ignorant, it doesn’t make me look stupid.

Why does it have to belong to someone stupid, stupid? And yes it makes you look stupid because you are dancing. Not very well but still you are. We’ll work on your moves together. Soon you’ll dance like Ginger Rogers instead of Dale Evans. Your reply does, however, make you look like you’re on the same intellectual level as your friend the "Sandn*****killer".

Sssssssssshhhh…….listen…….hear that? That silence? Thats me not caring what you think. – Hide quoted text — Show quoted text -"Sandn****killer"? With a name like that, I bet you’re a deep thinker. Even the slightest hint of a thought would starve in your pea brain.

Response:

Now if we could shut you up. – Hide quoted text — Show quoted text – Yeah – get rid of the guy doing it.  Unfortunately, the Usenet is kinda like the Wild West right now – for every ISP that dumps a freak like this forger, there’s another one willing to sign him up all in the name of free speech. How can this  "forging" happen ??? Is it possible to prevent us from this stupid kind of joke ??? F.U. Some sexually frustrated individual with bad spelling has decided to forge Mister Charlie.  Chuck is a great guy and none of this crap should be attributed to him… Things happen for a reasona dn you whiny assholes must have cancer and lupus because you were bad people and god is punishing you. You deserve all the pain you are feelinga nd I dont feel sorry for you one bit. Fuck you and your self inflicted illnesses. Im an impotent zoloft addict and you dont see me complaining. Stop crossposting your whiny complaints to the Beatles newsgroup assholes

Response:

How can this  "forging" happen ??? Is it possible to prevent us from this stupid kind of joke ??? F.U.

What happens is in O.E. and several other readers/posters,you can change the handle/e-mail address,usually for spam blocking but also sadly for forging. Tim —— Duchy of Grand Fenwick In Italy for thirty years under the Borgias they had warfare, terror, murder, bloodshed –  but they produced Michelangelo, Leonardo da Vinci, and the Renaissance.  In Switzerland they had brotherly love, 500 years of democracy and peace, and what did that produce? The cuckoo clock.

Response:

Yeah – get rid of the guy doing it.  Unfortunately, the Usenet is kinda like the Wild West right now – for every ISP that dumps a freak like this forger, there’s another one willing to sign him up all in the name of free speech.

– Hide quoted text — Show quoted text – How can this  "forging" happen ??? Is it possible to prevent us from this stupid kind of joke ??? F.U. Some sexually frustrated individual with bad spelling has decided to forge Mister Charlie.  Chuck is a great guy and none of this crap should be attributed to him… Things happen for a reasona dn you whiny assholes must have cancer and lupus because you were bad people and god is punishing you. You deserve all the pain you are feelinga nd I dont feel sorry for you one bit. Fuck you and your self inflicted illnesses. Im an impotent zoloft addict and you dont see me complaining. Stop crossposting your whiny complaints to the Beatles newsgroup assholes

Response:

How can this  "forging" happen ??? Is it possible to prevent us from this stupid kind of joke ??? F.U. What happens is in O.E. and several other readers/posters,you can change the handle/e-mail address,usually for spam blocking but also sadly for forging. Tim

But O.E. doesn’t let you change the posting host’s name, so you can still find out the person’s real ISP.  The forger is using more sophisticated software that allows someone to completely hide any trace of whoever it is writing the post.

Response:

Why doesn’t someone just delete this obviously sick and rude post???  Just wondering.

Response:

How can this  "forging" happen ??? Is it possible to prevent us from this stupid kind of joke ??? F.U.

– Hide quoted text — Show quoted text – Some sexually frustrated individual with bad spelling has decided to forge Mister Charlie.  Chuck is a great guy and none of this crap should be attributed to him… Things happen for a reasona dn you whiny assholes must have cancer and lupus because you were bad people and god is punishing you. You deserve all the pain you are feelinga nd I dont feel sorry for you one bit. Fuck you and your self inflicted illnesses. Im an impotent zoloft addict and you dont see me complaining. Stop crossposting your whiny complaints to the Beatles newsgroup assholes

Response:

We’re trying FU, we’re trying.  But hackers can do many things that ordinary folk can’t.  Sorry for the spilled over ugliness.

– Hide quoted text — Show quoted text – How can this  "forging" happen ??? Is it possible to prevent us from this stupid kind of joke ??? F.U. Some sexually frustrated individual with bad spelling has decided to forge Mister Charlie.  Chuck is a great guy and none of this crap should be attributed to him… Things happen for a reasona dn you whiny assholes must have cancer and lupus because you were bad people and god is punishing you. You deserve all the pain you are feelinga nd I dont feel sorry for you one bit. Fuck you and your self inflicted illnesses. Im an impotent zoloft addict and you dont see me complaining. Stop crossposting your whiny complaints to the Beatles newsgroup assholes

Response:

Dear disturbed troll,         You will be quite happy to know that your name has been sent to your remailing service.  You should have your account pulled soon. Please grow up and quit hurting people for no good reason. DeeAnne Flaws – Hide quoted text — Show quoted text – Things happen for a reasona dn you whiny assholes must have cancer and lupus because you were bad people and god is punishing you. You deserve all the pain you are feelinga nd I dont feel sorry for you one bit. Fuck you and your self inflicted illnesses. Im an impotent zoloft addict and you dont see me complaining. Stop crossposting your whiny complaints to the Beatles newsgroup assholes

Response:

And sure enough, another forged post from an anonymous remailer. Things happen for a reasona dn you whiny assholes must have cancer and lupus because you were bad people and god is punishing you. You deserve all the pain you are feelinga nd I dont feel sorry for you one bit. Fuck you and your self inflicted illnesses. Im an impotent zoloft addict and you dont see me complaining. Stop crossposting your whiny complaints to the Beatles newsgroup assholes

– Family Websites:  http:/seeberfamily.org A usefull method for ending terrorism:  http://www.skirsch.com/politics/plane/ultimate.htm

Response:

Things happen for a reasona dn you whiny assholes must have cancer and lupus because you were bad people and god is punishing you. You deserve all the pain you are feelinga nd I dont feel sorry for you one bit. Fuck you and your self inflicted illnesses. Im an impotent zoloft addict and you dont see me complaining. Stop crossposting your whiny complaints to the Beatles newsgroup assholes

Response:

Things happen for a reasona dn you whiny assholes must have cancer and

lupus <snip I know this post is a forgery and is not really from Mr Charlie… Sheesh, at least our loonies here are just ordinary loonies and not sicko angry loonies. Lance *****

Response:

Some sexually frustrated individual with bad spelling has decided to forge Mister Charlie.  Chuck is a great guy and none of this crap should be attributed to him…

– Hide quoted text — Show quoted text – Things happen for a reasona dn you whiny assholes must have cancer and lupus because you were bad people and god is punishing you. You deserve all the pain you are feelinga nd I dont feel sorry for you one bit. Fuck you and your self inflicted illnesses. Im an impotent zoloft addict and you dont see me complaining. Stop crossposting your whiny complaints to the Beatles newsgroup assholes

Response:

In the jingle-jangle morning of rec.music.beatles, I’ll come following a Cowardly Anonymous Troll: See the Troll post See the Troll use an anonymous server See the Troll use sombody else’s name See the Troll insult the people on other newsgroups for his personal gratification you’ll wish you could See the Troll under a steamroller. Path: nsw.nnrp.telstra.net!news.syd.connect.com.au!news.mel.connect.com.au!news-s pur1.maxwell.syr.edu!news.maxwell.syr.edu!news.tele.dk!small.news.tele.dk!f reedom.gmsociety.org!usenet-gateway-x3!usenet-gateway-x2!usenet-gateway Comments: This message did not originate from the Sender address above.         It was remailed automatically by anonymizing remailer software.         Please report problems or inappropriate use to the         http://remailer.segfault.net/mixmaster/ Newsgroups: alt.support.cancer,alt.support.lupus,rec.music.beatles Lines: 6 Xref: nsw.nnrp.telstra.net alt.support.cancer:30814 alt.support.lupus:24131 rec.music.beatles:338332 — New MP3 files added 08 September 2001 Group home page – http://groups.yahoo.com/group/ryno-nasal-horn

Response:

Question:

Vicious newsgroups. … Well, this is the only one I post to and I have read others.  I read them and found that they were not what I had thought them to be, so I left as quietly as I came in.   As to tearing apart the newbies, well, that is wrong, and that is when we let our emotions get the best of us and loose focus on what our goals are.  For that, I do apolgize. I do feel that it is up to the people that have been around for a while to help facilitate, and also keep the goals alive in the newsgroup.  That is just a product of being one of the old timers.  LOL   As to the thread of sherry, well, that is a difficult one.  The goal here is to print the truth and not have it twisted.  The emotions run high as many have been hurt.  Those emotions carry over and hurt those that it is meant to help protect and understand one of the dangers on the internet.  As we discover more dangers, they should be exposed and the truth should also be told. One of the reasons I have visited newsgroups is because they often allow me to sift through the crap and make decisions based on my own understanding. The thing I don’t like is the advertizing and the smut crap that seem to appear from time to time.  This seems worse on Teen support groups and teen chats.  I guess they try and hurt them when they are younger.  That is the downfall of a non-monitored newsgroup.  But, if I was not there, I would not have known and perhaps would have let our younger visitors use a screen name without blocking these groups from them for access. As to Barbara, I hope that I have not spoken ill toward you.  your efforts to maintain neutral are quite well focused.  Just this one thread is one that many of us need to be able to vent and share, and help others see the danger.  Then the healing can begin. Take care, Don and Brandy the wonderdog ;-)

Response:

Sharon,  My tears have turned to big wide grins. Thank you!  Barbara.

Response:

test post newbie

Response:

Ya got MY reethpekt, that’th for shore! –Jaimeth – Hide quoted text — Show quoted text -Barbara Reutercrona wrote: > While I have not posted on newsgroups other than this one, I do post on > message boards. When I have tried to be a sort of mediator to a current > controversial topic, I have found myself being attacked by what I refer to > as a form of cultism. If you are fairly new to the board and make any waves, > the original members tend to tear you apart piece by piece. I have, believe > it or not, resorted to tears because my feelings were destroyed by people > that I do not know, nor do they know me. They succeeded in what perhaps was > their end goal. I no longer post on those boards. Can you imagine being this > sensitive at the ripe old age of  68? I am working on this problem and have > come here to this newsgroup because I like your honesty and now that I have > confessed my age, I expect respect. LOL!!!!! ………B.R………..

Response:

>Most of the time it is only one or two who have nothing better to do than to >try and cause problems.  I have no problems with discussions.  I do, >however, take offense when someone posts nasties to the discussion trying to >cause a flame war.  And, unfortunately, when my temper gets flares, they >have accomplished what they want because then I become involved.  I am >taking some time to reflect and see what I can do to calm myself and stop >this response.  If I don’t, then I don’t think and that can cause big >problems. >What about the rest of you?  What is your first reaction and what do you try >to do to avoid getting involved?  I really would like to hear what others >have to say about this.  HUGS~ Jenn/NC

If worse comes to worse, a particular troublemaker can be filtered out so their postings don’t show. Most every NG browser has such an option. Sort of what you don’t know won’t hurt you. On alt.snail we have regulars that post all the time. It’s a matter of getting to know these people over a period of time. When first subscribing to a NG, it’s best to lurk for a while to ascertain the general tone of the group. I guarantee that a newcomer who comes on like Gangbusters at the beginning will get flamed but plenty. Since most news groups are not moderated, the subscribers who want good quality will govern the news group. There is peer pressure and a heirarchy in every phase of life including news groups. For the most part you can simply ignore trollers and eventually they go away. To avoid having anything related to a news group leak into your email, you can put up a bogus email addy. IE ^^^^@###.$$$ That way, any personal response will not be sent to your real email address since it’s the bogus address that’s being responded to. This is perfectly legal to do, as my own ISP recommended doing this to avoid spam and abusive email replies. Also, if there is a poster who’s abusive or flooding the news group with garbage, you can complain to abuse@ whatever ISP is being used. Most news group browsers will allow you to view header information and any complaint to ‘abuse’ should have this info pasted at the top of the complaint message. There’s all kinds of numbers and routing info that the ISP will be able to use to track down the offending party. Depending on the severity and frequency of the offending material, a newsgroup user might get a warning from the ISP or at the extreme be shut off. This is rare, but can happen. A news group is what one or more than one makes it. If lots of people are active, then there’s lots of threads and postings. If no one is active, then it will be a ‘nothing day’ with no postings at all. Since this topic seems to be of interest to many, I see a lot of activity. BOB

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Barbara, How wonderful Grays Harbor is with the laid back life style.  I love it when we get a chance to go out that way.  There are a number of craft stores my wife loves to stop and visit ( hahaha and load up the car while we are there ). We live over in Port Orchard and anytime you are over this way, we will brew up a pot of my favorite blend of beans and have a chat.   Thank you for your kind reply. Take care, Don and Brandy

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Barbara, You know we all love you because you’re lovable (and we were taught to respect our elders, LOL).  Do stay in touch.  I enjoy our "private" little chats. Sharon Andrews "Barbara Reutercrona" <bah…@techline.com> wrote in message

news:tf5rrrp1n5hnbb@corp.supernews.com… – Hide quoted text — Show quoted text -> While I have not posted on newsgroups other than this one, I do post on > message boards. When I have tried to be a sort of mediator to a current > controversial topic, I have found myself being attacked by what I refer to > as a form of cultism. If you are fairly new to the board and make any waves, > the original members tend to tear you apart piece by piece. I have, believe > it or not, resorted to tears because my feelings were destroyed by people > that I do not know, nor do they know me. They succeeded in what perhaps was > their end goal. I no longer post on those boards. Can you imagine being this > sensitive at the ripe old age of  68? I am working on this problem and have > come here to this newsgroup because I like your honesty and now that I have > confessed my age, I expect respect. LOL!!!!! ………B.R………..

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There is one diet ng that I monitor and where I used to post. It always annoyed the heck out of me that there was always someone who would be sure to post the opposite to everyone else. If someone said that eating 100 candy bars made them gain weight someone would always pop up with "Well, it’s not that way for me" Whack! Right in the head with a wet noodle! For almost a year I posted on a group that was torn apart by trolls. It got so bad the members turned on each other in their frenzy. So sad. I used to have a good time there. Jo

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On Fri, 04 May 2001 15:02:35 GMT, "Amelia Yaussy" <ayau…@forcemail.com> wrote: >Bob, you’ve inspired me to a new thread.  I’d like to hear more of others’ >experiences with truly nasty posting on newsgroups.  I have a friend in the >chess world who gets regularly dragged through the coals on one of their >n/gs.  They’ve called him everything but a man! >I’ve also seen some major attacks on other support n/gs, which seems to be >against the spirit of the whole idea of support, except that there is a real >fear of newbies being taken advantage of, and I gather the expereinced users >are really just trying to be protective.  Good in some ways – I remember >having my feelings hurt a few times early on when I didn’t understand the >"game."

I subscribe to a group called alt.snail-mail. It’s what you can call a combination of a family and a soap opera. Depending on the weather, the time of the year, or the tone of a given thread, there is a definite general mood. There are times we’re all lovey dovey and the next moment it’s out and out hostile. What makes it this way is not so much the content of a posting as it is the way it’s presented. Needless to say, the USPS leaves a lot to be desired as far as giving optimal service. However, let a poster come in out of the blue and make a derogatory remark about postal workers as being lazy, under worked, and overpaid and let a letter carrier read it after working eight hours in a 30 degree below zero windchill factor. You’ll see how many nasty postings will show that night. I assure you that I’ve gone ballistic at times. One moment we might argue or tell jokes, but when there is a common factor such as the weather or a comment about a postal worker’s effort brought up, it’s amazing how ‘rivals’ turn into allies. I’ve seen mass attacks done on people who are abusive. While I more than likely will not put a face to those I’ve ‘known’ for years (I do know one personally and lovingly), there’s not a moment that I don’t wonder ‘wuzzzzzzZuppp?’ with the gang. It’s not good to take things personally when at a news group. However, this is easier said than done. I enjoy this news group and feel very much akin to the ‘regulars’. I’m surprised as to how well behaved this group generally is. Even though this week was a tad ‘heated’, I wouldn’t call it being badly behaved. I’ve seen some REAL bad stuff posted elsewhere. Believe it or not, I have a split personality. While I hold my ‘tongue’ here, I’m not so prone to do so at alt.snail. Like most everyone else there, I’ve used language that would make Popeye blush. I won’t here, because this is a group of people who have a 24 / 7 illness as opposed to matters concerning that which is professional. There are various standards and factors, written and unwritten that news group posters should follow. I guess it’s do as the Romans do. BOB C|8-{ "Assassins!"- Arturo Toscanini to his orchestra

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Bob, you’ve inspired me to a new thread.  I’d like to hear more of others’ experiences with truly nasty posting on newsgroups.  I have a friend in the chess world who gets regularly dragged through the coals on one of their n/gs.  They’ve called him everything but a man! I’ve also seen some major attacks on other support n/gs, which seems to be against the spirit of the whole idea of support, except that there is a real fear of newbies being taken advantage of, and I gather the expereinced users are really just trying to be protective.  Good in some ways – I remember having my feelings hurt a few times early on when I didn’t understand the "game." — Amie ——- Misfortune comes from having a body. Without a body, how could there be misfortune? –Tao Te Ching

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I read a NG about child support, but haven’t posted yet.  This one looks like a man against woman NG and the men (and sometimes women) can get really nasty towards the opposite sex.  At first, all I saw were men posting nasties about women, but then towards the bottom I saw women post.  I was going to unsub if it were all men, lol, as I could tell they had serious problems with women.  :) I have seen flames wars start over and over again.  The main reason that the Lupus Foundation took down their message boards was because the FBI told them they could be held liable for the flaming and harassing of others if they didn’t do something to try to prevent it.  Instead of doing that, they decided to just close the message boards.  I am one of only a couple who know this, as I have seen the documents and emails and know the circumstances involved. Most of the time it is only one or two who have nothing better to do than to try and cause problems.  I have no problems with discussions.  I do, however, take offense when someone posts nasties to the discussion trying to cause a flame war.  And, unfortunately, when my temper gets flares, they have accomplished what they want because then I become involved.  I am taking some time to reflect and see what I can do to calm myself and stop this response.  If I don’t, then I don’t think and that can cause big problems. What about the rest of you?  What is your first reaction and what do you try to do to avoid getting involved?  I really would like to hear what others have to say about this.  HUGS~ Jenn/NC "Amelia Yaussy" <ayau…@forcemail.com> wrote in message

news:fwzI6.134514$BB5.1638476@typhoon.columbus.rr.com… – Hide quoted text — Show quoted text -> Bob, you’ve inspired me to a new thread.  I’d like to hear more of others’ > experiences with truly nasty posting on newsgroups.  I have a friend in the > chess world who gets regularly dragged through the coals on one of their > n/gs.  They’ve called him everything but a man! > I’ve also seen some major attacks on other support n/gs, which seems to be > against the spirit of the whole idea of support, except that there is a real > fear of newbies being taken advantage of, and I gather the expereinced users > are really just trying to be protective.  Good in some ways – I remember > having my feelings hurt a few times early on when I didn’t understand the > "game." > — > Amie > ——- > Misfortune comes from having a body. > Without a body, how could there be misfortune? > –Tao Te Ching

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Jaimeth, You are thoe thweet!!……….."B"……….

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Barbara Reutercrona wrote: > While I have not posted on newsgroups other than this one, I do post on message boards. When I have tried to be a sort of mediator to a current controversial topic, I have found myself being attacked by what I refer to as a form of cultism.>>>

I know what you mean, Barbara. I tried to make the fighting stop on a ng, and was reminded that just by posting that comment that I was now embroiled in the controversy. Ya can’t win! >>Can you imagine being this sensitive at the ripe old age of  68?

………B.R………..>> Barbara, I’m not that far behind you, 61, and my feelings get hurt, too. "Stick and stones" doesn’t work, the name calling hurts! Jo

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Don, This is to let you know that you have never, ever, not once, made any remark, be it directly or indirectly to hurt my feelings. My skin is getting as tough as rawhide now and if you misbehave I will just get in my car and drive for an hour and a half to where you live and look you straight in the eye, (mine of course will be filled with tears) and have you apologize!!……..You do live in Washington State, right? If you are wondering, I live in the Grays Harbor area.  Have a great weekend. B.R.

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While I have not posted on newsgroups other than this one, I do post on message boards. When I have tried to be a sort of mediator to a current controversial topic, I have found myself being attacked by what I refer to as a form of cultism. If you are fairly new to the board and make any waves, the original members tend to tear you apart piece by piece. I have, believe it or not, resorted to tears because my feelings were destroyed by people that I do not know, nor do they know me. They succeeded in what perhaps was their end goal. I no longer post on those boards. Can you imagine being this sensitive at the ripe old age of  68? I am working on this problem and have come here to this newsgroup because I like your honesty and now that I have confessed my age, I expect respect. LOL!!!!! ………B.R………..

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Question:

You Go Girl! Take charge of YOUR health, no one can do it for you.  Your doc’s are only part of your team, not the team leaders.  Always ask for copies and ask questions, compromise sometimes has to occur, but never settle, be assertive.  Sounds like your ready to take control. Hugs back at ya! Steph

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On Wed, 6 Sep 2000 08:47:41 -0400, you wrote: >Susan,  I had to learn the hard way.  From the start when I got sick all the docs would do >is say did you have this and this and this.  Heck, how can you remember. Then one would >say something else.  and nothing seemed ever to get done.  I had to demand tests and they >would say no, it was not necessary.  So like a good red head, I got fed up LOL

aaaaaah… so that’s the problem… :) (from another redhead).

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Yep, Susan.  That’s what you have to do.  I learned some things that made *me* feel better even though it may have seemed adversarial (sp?) to my docs.  First, I don’t sit on the exam table when they come in. I sit in a chair if it’s available, or I stand.  This kinda scared one doc who was sure I was psychotic and dangerous. <snicker> I just was making the point that I wouldn’t be treated like a child. My rheumy is good about this, has two extra chairs in the exam room and waits until I’ve expressed myself before putting me on the table. I insist on the same from my PCP.  I also take someone with me usually.  In fact, I can’t remember going alone in a long time.  Used to be my mum but she’s moved away so now it’s my daughter most times. My hubby went to a couple of appts.  Having someone there that made me feel strong and supported, made it easier for me to speak up and make my point.  And I finally said "I don’t care what we call this! I just want to get some relief."   I am a lot more assertive here than I am in RL so this was a major battle for me to get to the point of talking to the doctors like they are equals/peers rather than gods. *********************************** KCat http://www.ghg.net/schwerpt/mypage.htm http://www.ghg.net/schwerpt/aslfaq20.htm   ("`-”-/").___..–”"`-._   (`6_ 6  )   `-.  (     ).`-.__.’`)    (_Y_.)’  ._   )  `._ `. “-..-”   _..`–’_..-_/  /–’_.’ ,’ (()),-”  (()),’    (((.-’

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In article <8ttcrs4uv7p6qhr0s0es2l75ofi0h4h…@4ax.com>, KCat <kcdoc…@ghg.net> wrote >On Wed, 6 Sep 2000 08:47:41 -0400, you wrote: >>Susan,  I had to learn the hard way.  From the start when I got sick all the >docs would do >>is say did you have this and this and this.  Heck, how can you remember. Then >one would >>say something else.  and nothing seemed ever to get done.  I had to demand >tests and they >>would say no, it was not necessary.  So like a good red head, I got fed up LOL >aaaaaah… so that’s the problem… :) >(from another redhead).

Whaddayamean.. *I’m* one too.  Perhaps with a small tinge of a hint of grey creeping in :( — Andy For Austrian philately <URL: http://www.kitzbuhel.demon.co.uk/austamps/> For Lupus <URL: http://www.kitzbuhel.demon.co.uk/lupus/> For my other interests <URL: http://www.kitzbuhel.demon.co.uk/>

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Gee Andy,,, I don’t have any grey. I got white streaks haha. No grey here…LOL — Janers "Somedays are diamonds, Somedays are stones" Somedays this pain won’t leave me the hell alone"

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Thanks for all of the replies!! For * us* with such complicated symptoms, that span over many years, this makes a lot of sense.   Just knowing that I am doing this, makes me feel better. Hugs, Susan

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I was reading the board on About.com and read a post where someone said to take charge of your own health.  I’ve read this on here before, but it never struck home like it did today.  I am going to write to the docs and clinics and get copies of my files to keep at home.  This will hopefully help me to get better health care.  I am tired of comprimising my quality of life.  If I am in pain or uncomfortable, I want appropriate treatment. Does this make sense?  Are there a lot of others that do this? Thanks!  I am feeling pro-active at the moment. Hugs, Susan

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Susan,  I had to learn the hard way.  From the start when I got sick all the docs would do is say did you have this and this and this.  Heck, how can you remember. Then one would say something else.  and nothing seemed ever to get done.  I had to demand tests and they would say no, it was not necessary.  So like a good red head, I got fed up LOL I went to every darn hospital and clinic and place where I could remember I ever, and I mean ever had an Xray.  Even wrote a place I went to once for an evaluation.  Well all the places were more than happy to give me a reply.  I signed a waver, and even waited on some of the paper work.  Good thing some places had something to eat LOL Then went and got me a file, llike a school file and put everything under a system.  Now mind you I am not that into doing this. For the docs, I did the same thing to and most of them sent the files to me.  When they did not I went a knocking.  This file goes with me where ever I roam….Even to the ER, Oh, so handy esp when a ER doc says oh the test look ok, then show them the last and they go  " yes, your right, lower than normal for you" It is what I call my bible.  I even have a huge envelope of Xray copies in my room.  I don’t take them too big LOL It is handy for me and for the docs.  Just to look it up.Another thing is I also get a copy of every lab tests my rheumy does.  She is good and always asks me if I want one. That way if something happens between visits I know for my own part what is going on….Gee, now the folder seems to be bigger,  oops just like me growing….LOL So good idea for me.  Try it you may find it is of great help to you and to the docs and clinics…. — Janers "Somedays are diamonds, Somedays are stones" Somedays this pain won’t leave me the hell alone"

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Question:

I just wanted to thank you for answering me.  That was the first time I ever wrote anything  on the computer.  Any idea where my original posting went??   Susan

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Once you read a post-if you don’t mark unread at bottom of screen it will not come up next time you log on-it see’s itself as being read, so make sure you mark unread on what you want to keep each time. Cindy

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Firstly, if you don’t give your doc all the information – he can only see the three complaints and the negative test and assume you do not have active autoimmune disease.  I recommend you find out what tests were done, get copies, and request a referral for a rheumatologist. Write up the symptoms you’ve had, whether they’ve been documented (sounds like many of them haven’t) and don’t be afraid to present that to either your gp or to the rheumatologist.  They can’t make educated guesses or dx with partial information.  And a negative test doest not mean you are disease free, however you might not have Lupus but some other autoimmune disease that has similar symptoms.  Or you may be of the small (really how small I don’t know – some say 2% – I believe it’s a larger number) percentage that is ANA negative. But find out what your tests really were.  If you have a positive ANA but a low one then you may be in the early stages of autoimmune disease. MHO only kc cat ******************** kc cat kcdoc…@ghg.net http://www.ghg.net/schwerpt/mypage.htm           ()()         ().–.()             (__)     ()()                  ().–.()                      (__)

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Sfos331 wrote: > I just went to a new doctor with the main complaint of my hands always shaking > and a rash along the sides of my nose (which I’ve had for years), and a very > bad low back ache.  He told me he wanted to rule out lupus.  I really didn’t > think I had lupus until I got a book on it.  Everything was there, my elbows > and wrists always hurting, tmj, sores on the insides of my mouth, rashes on my > arms, bad memory, trouble concentrating, trouble going up steps (muscles in my > legs) and so on. Things I didn’t even tell him because I didn’t want to sound > like a big complainer.   I have to say I thought he was really on top of > things.  I was also really frightened. > I called for my blood work and was told by the nurse that it was normal.  Am I > really lupus free?

I would suggest that you find out which tests your Dr.had performed. Then post those test results for the more informed on this newsgroup to check out.  You’ll get better answers with better information. God bless, George

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I just went to a new doctor with the main complaint of my hands always shaking and a rash along the sides of my nose (which I’ve had for years), and a very bad low back ache.  He told me he wanted to rule out lupus.  I really didn’t think I had lupus until I got a book on it.  Everything was there, my elbows and wrists always hurting, tmj, sores on the insides of my mouth, rashes on my arms, bad memory, trouble concentrating, trouble going up steps (muscles in my legs) and so on. Things I didn’t even tell him because I didn’t want to sound like a big complainer.   I have to say I thought he was really on top of things.  I was also really frightened. I called for my blood work and was told by the nurse that it was normal.  Am I really lupus free?

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Question:

Any thoughts on how to start finding a sister for Max<<

Yes, Spend the next decade loving Max to pieces, and Learn all you can about the waiting children here in America. Should it come to pass that you can add another child to your family, consider a 5+ year old girl who is languishing in foster care somewhere and who might bring you more joy that you imagine possible.   By adding to your family this way, you can take Sue’s advice to look into all the corners of your wife’s medical history and not do anything in a hurry that you might regret later, making sure that your wife is up to the challenge of raising two children.  You can  still have a daughter who is close enough in age to her brother to be a sibling/companion.   Life is long, you don’t need to be in such a hurry- Building your family via adoption means you can still be adding children well into your 50’s, if you are so inclined.  There are half a million waiting children in America, not all adoptions are of healthy white infants.  Learn more about adoption and celebrate your son- then come back and make a plan. And, by the way- your feelings of impatience and anxiety are normal.  I think it comes with the Post Partum.  I had a horrendous pregnancy but when I woke from the anesthesia I couldn’t wait to do it again….till Mathew turned Best of luck to you.

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July 10th My wife had a beautiful baby boy, We named him Max Alan.  He is a joy and he is being loved.  I can not wait until I see what face he makes next. We know that we want to have another baby ( a girl if we could chose).  I don’t think that my wife Victoria will want to go through the difficult experiance that she did again in order to have a second baby.  She had 3 miscarriages before getting pregnant a 4th time.  We went to see a specialist about what might be her problems.  We we told that she has an imune disorder called Antiphospholipid syndrom.  What this means is that the body feels that the placenta is a foriegn body and attacks it.  It does this by clotting the blood in the placenta effectivly cutting off nurishment, oxygen etc to the growing baby….hence the miscarriages. ( One at 3 months which was horrific and a terrific strain emotionally. When we found out that Vistoria had this disorder we found that the only treatment currently was to give 2 daily injections of hepren(a blood thinner) into her back or stomach. We have been rewarded after 9 months of what was still considered a high risk pregnancy with Max.  We are so happy but we know we want to have another.  Victoria’s body looked like it had been beaten on a daily basis as the hepron caused large black and blue marks at every injection site.   We are now settling in to enjoy our new wonder, and knowing that adoption is a long process.  We want to start looking into doing it right away. Any thoughts on how to start finding a sister for Max Brett

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July 10th My wife had a beautiful baby boy, We named him Max Alan.  He is a joy and he is being loved.

Congrats! <snip We know that we want to have another baby ( a girl if we could chose).  I don’t think that my wife Victoria will want to go through the difficult experiance that she did again in order to have a second baby.  She had 3 miscarriages before getting pregnant a 4th time.  We went to see a specialist about what might be her problems.  We we told that she has an imune disorder called Antiphospholipid syndrom.

Antiphospholipid syndrome can be a primary condition UNassociated with underlying disease, but it may also be one of the first symptoms of more serious disease.  I certainly hope this doesn’t come as a surprise to you … but I think it’s important information to convey, especially given all the child-bearing losses associated with this constellation of factors.   What this means is that the body feels that the placenta is a foriegn body and attacks it.  It does this by clotting the blood in the placenta effectivly cutting off nurishment, oxygen etc to the growing baby….hence the miscarriages.

It does that … and more. When we found out that Vistoria had this disorder we found that the only treatment currently was to give 2 daily injections of hepren(a blood thinner) into her back or stomach.

Heparin might be the only treatment FOR VICTORIA, but it’s not the only treatment.  And research may provide other treatments in the near-term future.  (If you’re a spouse who’s given to offering prayers of thankfulness, you might add Nigel Harris’s name … it was only 15+ years ago that he/his team began to tease out exactly what it was that caused high "fetal wastage" in women such as Victoria.) <snip We are now settling in to enjoy our new wonder, and knowing that adoption is a long process.  We want to start looking into doing it right away.

Sounds premature to me.  I’d suggest that you talk to other physicians, the Arthritis Foundation, the Lupus Foundation, etc., before rushing to increase the size of your family.   That may sound unkind to you, but imo it’s a matter of kindness to Max and to any siblings he might have. Any thoughts on how to start finding a sister for Max

You DID ask. Best wishes.                                            Sue T.

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